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    Patient Worthy’s Memes

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    Patient Worthy Memes

    Just because something isn't visible, it doesn't m Just because something isn't visible, it doesn't mean it isn't there. In rare disease, occult symptoms can delay answers and complicate care. Trust your instincts and keep advocating! #RareWordOfTheWeek #RareDisease #PatientWorthy
    A new treatment that targets a type of white blood A new treatment that targets a type of white blood cell is showing promising results for a safer and more effective approach to treating ulcerative colitis. Read more at patientworthy.com!
    This week on Patient Worthy's site, we're putting This week on Patient Worthy's site, we're putting a spotlight on Paroxysmal Nocturnal Hemoglobinuria (PNH). We'll be sharing helpful information to explain what PNH is, explore potential treatment options, and provide an opportunity for patients and caregivers to share their own personal stories with this condition. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information! #ParoxysmalNocturnalHemoglobinuria #PNH #ShareYourStory #PatientWorthy #RareDisease

If you have a story to share, click the link in our bio!
    World Hepatitis Day is observed every year on July World Hepatitis Day is observed every year on July 28 to raise awareness about viral hepatitis- a group of infectious diseases (hepatitis A, B, C, D, and E) that cause liver inflammation and can lead to serious health complications. Hepatitis can remain silent for years, with no symptoms until it causes liver damage, cirrhosis, or cancer. This World Hepatitis Day, take action: Get tested, seek treatment, protect yourself and your loved ones.
Hepatitis can't wait. Neither should you!
#WorldHepatitisDay #LiverHealth #HepatitisCantWait #PatientWorthy
    Global markets for paroxysmal nocturnal hemoglobin Global markets for paroxysmal nocturnal hemoglobinuria (PNH), a rare but serious blood disorder, are currently poised to skyrocket over the next 10 years, leading to more effective and accessible treatment options for patients. Read more at patientworthy.com!
    An interview with Johnny’s Mom: A Dravet Syndrom An interview with Johnny’s Mom: A Dravet Syndrome Family Life https://bit.ly/4o1mxvB Read now at PatientWorthy.com
#PatientWorthy #PatientStory #DravetSyndrome
    Diagnosing a rare condition like Epidermolysis Bul Diagnosing a rare condition like Epidermolysis Bullosa often takes time, expertise, and the right tools. For many families, getting answers is the first step toward understanding and managing life with EB. #EpidermolysisBullosa #RareDiseaseAwareness #LivingWithEB #PatientWorthy #ShareYourStory 

If you're interested in sharing your story, click the link in our bio!
    Dogs have proven why they're "man's best friend" f Dogs have proven why they're "man's best friend" for the millionth time: a new study suggests dogs can actually smell the earliest stages of Parkinson's disease.

Read more at patientworthy.com!
    July 26th marks the anniversary of the Americans w July 26th marks the anniversary of the Americans with Disabilities Act - a landmark law that protects the rights of people with disabilities and helps create a more inclusive, accessible world. Let us continue to push for equity, access, and respect for all! #ADAAnniversary #PatientWorthy
    The House of Representatives has sharply criticize The House of Representatives has sharply criticized the Health Resources and Services Administration (HRSA) after a recent report about its statistics on organ donation and transplant. Read more at patientworthy.com!
    Ultragenyx has run into an unexpected hurdle after Ultragenyx has run into an unexpected hurdle after the FDA has rejected its new gene therapy targeted at treating glycogen storage disease (type 1a) over manufacturing concerns. Read more at patientworthy.com!
    New Hope for Epidermolysis Bullosa: Tampere Univer New Hope for Epidermolysis Bullosa: Tampere University Licenses Promising Drug to Theravia https://bit.ly/4m8pBUZ Read now at PatientWorthy.com
#PatientWorthy #EpidermolysisBullosa #EB #EBAwareness
    It’s Hemochromatosis Awareness Month! This #Fact It’s Hemochromatosis Awareness Month! This #FactFriday, discover why too much iron isn’t always a good thing and learn the signs of this common genetic disorder. #HemochromatosisAwareness #Hemochromatosis #PatientWorthy
#ShareYourStory at the link in our bio!
    Meet Gracie, 36 yo from New York, who has been dia Meet Gracie, 36 yo from New York, who has been diagnosed with PCOS, obesity, PMDD, and sleep apnea. @gracie__gaga

Over the course of her entire life, Gracie has struggled with binge eating and food addiction, and has found herself wondering why she could never apply her intense work ethic and desire for achievement to her health. Once she found her way to GLP-1 medications, as well as a PCOS diagnosis, and armed with knowledge of the disease of obesity, her frustration became validated. While she works toward good health, Gracie is on a mission to educate her community about food noise, disordered eating, the stigma against the disease of obesity as well as use of GLP-1 medications, and other related issues. She has lost 80 pounds over 14 months, and has dedicated herself to her growing passion for running. 

Today, Gracie is parlaying her writing and multimedia background into content creation, writing for her own blog, “Gracie Fights Food Noise,” which documents her weight loss and health journey. 
You can find her blog here: https://marygracedonaldson.wixsite.com/fightingfoodnoise 
Socials: 
Facebook — Gracie Donaldson Cipriano
TikTok — @therealgracied

If you'd like to share your story, connect with us at the link in our bio!
    Living with Familial Chylomicronemia Syndrome. Rea Living with Familial Chylomicronemia Syndrome. Read Sylvie's story now at PatientWorthy.com
#PatientWorthy #PatientStory #FamilialChylomicronemiaSyndrome #FCS
    World🌎IVF Day| July 25th 1 in 6 people face inf World🌎IVF Day| July 25th
1 in 6 people face infertility, yet their journeys are often invisible.
Today, we honor every tear, every hope, every step of the IVF journey. Behind every embryo transfer, hormone injection, and waiting room is a person or couple longing for a child- and the courage it takes to keep going. Everyone deserves the chance to grow their family!
#WorldIVFDay #IVFSupport #HopeThroughScience #FertilityAwareness #PatientWorthy
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