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    Patient Worthy’s Memes

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    Patient Worthy Memes

    Nonprofit organization Cure Rare Disease has annou Nonprofit organization Cure Rare Disease has announced new leadership with the hopes of making leaps and bounds towards research and therapies tied to rare disease. Read more at patientworthy.com!
    This week is Helen Keller Deaf-Blind Awareness Wee This week is Helen Keller Deaf-Blind Awareness Week! A time to recognize the achievements and advocacy of the deaf-blind community. Named in honor of Helen Keller, it's a reminder to promote inclusion, accessibility, and equal opportunities for all. #DeafBlindAwarenessWeek #HelenKeller #ShareYourStory

If you're interested in sharing your story, click the link in our bio!
    A new clinical trial seems to provide a promising A new clinical trial seems to provide a promising future for those incapable of speech due to conditions such as ALS or stroke, among others. "Brain-to-voice" technology is being developed to allow people to regain their speech.

Read more on patientworthy.com!
    Understanding Prader-Willi Syndrome: Insights from Understanding Prader-Willi Syndrome: Insights from the TREND Community (Part 3). Read now at PatientWorthy.com
#PatientWorthy #TRENDCommunity #Prader-WilliSyndrome #PWS #PraderWilliSyndromeResearch
    It's important to know the warning signs of Alzhei It's important to know the warning signs of Alzheimer's disease because early detection can make a significant difference in treatment and quality of life. Early intervention allows individuals and families more time to prepare, seek support, and explore therapies that may slow progression. If you are interested in sharing your story, click the link in our bio.
#AlzheimersSupport #KnowTheSigns #PatientWorthy #YouAreNotAlone
    When most people think of Alzheimer’s, they thin When most people think of Alzheimer’s, they think of memory loss—but there’s so much more to this disease. This #AlzheimersAwarenessMonth, we’re shining a light on the lesser-known ways Alzheimer’s can affect daily life. Early recognition of these signs can help families find support and care sooner.
#AlzheimersAwareness #DementiaSupport #BrainHealth #PatientWorthy
#ShareYourStory with us at the link in our bio.
    Join us for our third and final part of Sebastien' Join us for our third and final part of Sebastien's story-share as a caregiver for his mother with breast cancer!

Read more at patientworthy.com!
    A doctor in India is working to bring a rare disor A doctor in India is working to bring a rare disorder into the spotlight after a young boy fainted every time his parents gave him a bath, which turns out to be more common than you might think!

Read more at patientworthy.com!
    Malaysian woman Shu Hua was once given five years Malaysian woman Shu Hua was once given five years to live after a grim diagnosis of ALS and Motor Neuron Disease. Now, 10 years later, she continues to serve as an inspiration to many, thanks to her resilience and positivity.

Read more at patientworthy.com!
    What if the next 10 years brought breakthrough tre What if the next 10 years brought breakthrough treatments, greater awareness, earlier diagnoses, and true inclusion for everyone affected by a rare disease? Here’s what our team hopes to see—and is working toward—for the rare disease community in the decade ahead. #PW10Years #PatientWorthy #RareDisease #RareDiseaseAwareness
    Wait, How Do You Spell That?”: Amplifying Rare D Wait, How Do You Spell That?”: Amplifying Rare Disease Voices Through Podcasting. Read now at PatientWorthy.com
#PatientWorthy #PatientWorthyAnniversary #PW10 #WhatHowDoYouSpellThat #PatientWorthyPodcast
    It's no secret to the patients, caregivers, and he It's no secret to the patients, caregivers, and healthcare workers in the rare disease space that there are myriad challenges one must face daily. Yet the social, emotional, and economic impacts are often even more dire than most realize.

Read more at patientworthy.com!
    These are the faces of resilience. These are the f These are the faces of resilience. These are the faces of Patient Worthy. 🩵 
For the past 10 years, Patient Worthy has been deeply moved and inspired by the courage of thousands of rare disease and chronic illness patients worldwide. Our community members are the heartbeat of Patient Worthy, and we are endlessly inspired by your courage and determination.

Watch this video tribute in celebration of our incredible readers, storytellers, and warriors. 

Join our community and share your story with us at the link in our bio.
#PatientWorthy #PW10Years #RareDiseaseAwareness #ChronicIlnessAwareness #ShareYourStory #YourVoiceMatters
    More than 30,000 Americans live with Amyotrophic L More than 30,000 Americans live with Amyotrophic Lateral Sclerosis (ALS) and each year 6,400 are diagnosed with it. By learning about it, we can support those living with ALS and help break down barriers.
#ALSAWARENESS #AwarenessDay #June21 #ShowYourSupport #PatientWorthy
    Dementia doesn't just affect memory. It can change Dementia doesn't just affect memory. It can change how a person speaks, understands, and connects through language. #BrainAwarenessMonth #AlzheimersAwarenessMonth #ShareYourStory 

If you're interested in sharing your story, click the link in our bio!
    An Indian soldier has successfully recovered from An Indian soldier has successfully recovered from a life-saving lung transplant, which was aimed at helping him overcome a rare condition known as Pulmonary Langerhans Cell Histiocytosis.

Read more at patientworthy.com!
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