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Patient Worthy’s Memes

Home » Patient Worthy’s Memes

Patient Worthy Memes

I believe you. Thank you @the.chronic.couple for I believe you. 

Thank you @the.chronic.couple for these reminders 💛

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#raredisease #chronicpain #chronicillness #spoonie
Amanda Gorman reminded us that sometimes, everythi Amanda Gorman reminded us that sometimes, everything is stacked against us, and we must learn to be the light in the darkness. This is a hard lesson that so many rare disease patients learn when they don’t have any other way to go. There, there is solace. 

Thank you to @katieisdoodling for this beautiful graphic of our young poet laureate.

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#raredisease #chronicpain #chronicillness #spoonie
You did not decide to need extra medical attention You did not decide to need extra medical attention, skipped dates, and extra downtime. You are not responsible for all the many side effects of living with a rare disease.

Thank you @thesickbitchclub for this post🌱
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#raredisease #chronicpain #spoonie #chronicillness
There have been so many times that my illness had There have been so many times that my illness had meant I needed someone, needed assistance or emotional support or to walk my dog. Thank you to everyone who has been there and continues to lend a hand when I need one.💛🌱

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#raredisease #chronicpain #chronicillness #spoonie #enfermedadesraras #enfermedadescrónicas #enfermedadautoinmune
Clinical trials are critically important to the de Clinical trials are critically important to the development of new treatments, and the IWMF has always strongly supported the participation of WM patients in clinical trials. Why Clinical Trials Matter and How to Find the Right One for You will explore the different types of clinical trials and how they operate, the factors that go into making a decision about whether a trial might be right for you, and the tools that you can use to find appropriate trials for your situation. 

Neena Kennedy is a Clinical Trial Nurse Navigator for the Leukemia and Lymphoma Society. She is part of a team of specially trained nurses focusing on educating and assisting patients with hematological malignancies navigate and find appropriate clinical trials. Prior to joining the Leukemia & Lymphoma Society, Ms. Kennedy was a Clinical Research Nurse at the City of Hope Comprehensive Cancer Center in Duarte, California. In her role at City of Hope, she managed a portfolio of clinical trials and cared directly for patients with blood cancers participating on clinical trials, including lymphoma, CLL and WM. She has co-authored several papers on lymphoma. She received her BSN degree from Seattle University, and holds a specialty certification from the Oncology Nurse Credentialing Center. She resides in the Seattle area with her family.

To register for this free webinar— link in the linktree in bio👆👆

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#raredisease #chronicpain #chronicillness #spoonie #clinicaltrials #iwmf
Spotlight Tuesday on rheumatoid arthritis known fo Spotlight Tuesday on rheumatoid arthritis known for its inflammation and swelling of the joints. 

Thank you @thesickbitchclub for sharing this!

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#raredisease #chronicpain #rheumatoidarthritis #rheumatoidarthritiswarrior #arthritis #spoonir
MLK reminds us that you don’t always chose your MLK reminds us that you don’t always chose your conditions, you can’t stop moving forward. Though we know it’s not easy or even possible many days, we have to accept the rest days and enjoy the good ones, and learn to live with our bodies. 

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#raredisease #chronicpain #chronicillness #spoonie
Today. Tomorrow. This weekend. 😴 I’m tired, s Today. Tomorrow. This weekend. 😴 I’m tired, sleepy, drowsy.

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#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #enfermedadesraras #enfermedadescronicas #enfermedadcronica #fatigacronica
I’m not going to get well soon, this too will no I’m not going to get well soon, this too will not pass. I’ll build mental strength though 💪🏿💪🏽

Thank you @thesickbitchclub for this post!

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#raredisease #chronicpain #chronicillness #spoonie
SEEKING: STUDY CONTROLS. The Dupuytrrn pilot study SEEKING: STUDY CONTROLS. The Dupuytrrn pilot study needs help. This research compares people who have Dupuytren with control people who don't.

One of the lab tests must be run on all samples of both groups at the same time.

So they can't proceed until they have all the blood samples collected.

They need more people without Dupuytren to enroll.

If you or someone you know matches the description, please consider enrolling. The researchers note they follow all measures to to text participants privacy. If you can lend a hand, visit the link in our linktree for more information, in the bio👆

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#raredisease #chronicpain #chronicillness #spoonie #dupuytren #dupuytrencontracture #control #studycontrol
Sometimes, life with a disease just doesn’t ease Sometimes, life with a disease just doesn’t ease up. It’s okay if you say you’ve had a hard day and mean it more than most people. It’s okay if it’s been a hard time for a really long time. 

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#raredisease #chronicpain #chronicillness #spoonie #enfermedadesraras #enfermedadesautoinmunes #enfermedadescronicas
I’m not boosted ahead because I’m receiving tr I’m not boosted ahead because I’m receiving treatment to maintain normal. I don’t want to feel like I need to hide it. 

Thank you @thechronicallyhonest for this graphic 🙏😊

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#raredisease #chronicpain #chronicillness #spoonie
A disease can drastically change expectations. It’s important to not dwell on what could have been in order to heal. It hurts to lose those plans, but it feels good to accept the new paths. One day at a time. 🌱

Thank you @oliviaherrickdesign for this graphic 🍜😌💛

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#raredisease #chronicpain #chronicillness #spoonie
What are your disease goals? • • • #raredis What are your disease goals?

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#raredisease #chronicpain #chronicillness #spoonie #chronicillness
Living with insecurity about your health and if it Living with insecurity about your health and if it’ll remain ok through the week is scary. @the.chronic.couple reminds us — we see you. we are with you.💛

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#raredisease #chronicpain #chronicillness #spoonie
It’s goal season.. but don’t stress! Goals sho It’s goal season.. but don’t stress! Goals should be personal and attainable, tailored to you. Don’t discount progress because it’s not as much as someone else. Your on your own spectrum.

Thank you @blessthemessy for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie
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Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

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