Rare Community Profiles: Revving for Hope: Raising HoFH Awareness in One Ride
Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their
The FH Foundation
The FH Foundation
The FH Foundation is a leading research and advocacy non-profit organization focused on reducing heart disease by driving scientific understanding and evidence-based care of FH. The mission of The FH Foundation is to save lives by contributing to scientific research that leads to greater understanding and improved diagnosis and treatment of familial hypercholesterolemia worldwide. Please visit www.TheFHFoundation.org for more information.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Familial Hypercholesterolemia
VERVE-101 Shows Promise in Treating HeFH, Phase 1b Study Results Show
Heterozygous familial hypercholesterolemia (HeFH) can be difficult to control on available standard-of-care cholesterol-lowering medications. Therapeutic interventions are needed to reduce high LDL cholesterol levels and
These Clinical Trials Could be Game Changers in the Latter Half of 2023
In a story from BioPharma Dive, a number of high-profile clinical trials are under way that could see conclusive results by the end of 2023.
Adding Evinacumab to Care Plan Can Significantly Increase HoFH Life Expectancy
In the average person, you would expect to see normal to near-optimal low-density lipoprotein (LDL) cholesterol levels sitting at 129 mg/DL or lower; levels under
Study Suggests Lomitapide Could Help Manage Pediatric HoFH
The 91st European Atherosclerosis Society (EAS) Congress took place from May 21-24, 2023. During the Congress, many stakeholders discussed the latest developments in basic, translational,
Rare Community Profiles: Heart Attack at 27: How an HoFH Diagnosis Allowed Peter to Live a More Empowered Life
Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease
