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December 2022

The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group

December 6 @ 7:00 pm - 8:00 pm

Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, visit www.supportgroupscentral.com/CCI

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The Center for Chronic Illness WA State Rare Chronic Illness Support Group

December 9 @ 1:30 pm - 2:30 pm

WA State Rare Chronic Illness Support Group A supportive group for WA state residents living with rare health challenges facilitated by Carrie Pope, MSW, LICSW 2nd Friday of each month, 1:30-2:30pm PST This program is currently meeting virtually. Visit www.thecenterforchronicillness.org/groups to sign up for free!

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February 2023

BHD Foundation and Myrovlytis Trust’s Meet the Experts: Lung Online Webinar

February 1, 2023 @ 5:00 pm - 6:00 pm

Meet the Experts: Lung February 1, 2023 We are delighted to announce Professor Lisa Henske will be our next expert discussing her work on BHD and lung cysts. Lisa is a medical oncologist at the Brigham and Women’s Hospital and Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical School. She provides clinical care for individuals with kidney and lung manifestations of BHD and is the Director of the Center for LAM Research and Clinical Care. Her research laboratory…

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April 2023

The Ehlers-Danlos Society’s 2023 EDS ECHO Summit: Hypermobility Spectrum Disorder (HSD) Virtual Conference

April 1, 2023 - April 2, 2023

2023 EDS ECHO Summit: Hypermobility Spectrum Disorder (HSD) Virtual Conference April 1-2, 2023 The EDS ECHO Summit Series event will be a two-day virtual event that will take place on April 1-2, 2023, and is suitable for both healthcare professionals, and members of the community, their families, and caregivers. ⁠ ⁠ The event will cover all aspects of hypermobility spectrum disorders with presentations from leading experts. Please register your interest for this event here. You will receive updates via email and will…

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August 2023

The Ehlers-Danlos Society’s 2023 Hybrid Global Learning Conference

August 2, 2023 - August 5, 2023

2023 Hybrid Global Learning Conference August 2-5, 2023 The Ehlers-Danlos Society is delighted to announce 2023 Global Learning Conference will be a hybrid event, taking place in Dublin, Ireland from August 2-5, 2023. This event is suitable for members of the EDS and HSD community, their families, and caregivers, and health professionals. Registration will open soon, please register your interest to be the first to get your ticket!

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