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August 2021

The MDS Foundation’s Outcomes for High-Risk MDS Patients Undergoing Transplant vs. Standard Non-Transplant Therapies Webinar

August 7 @ 12:00 pm - 1:00 pm

Outcomes for High-Risk MDS Patients Undergoing Transplant vs. Standard Non-Transplant Therapies August 7, 2021 Speaker: Erica D. Warlick, MD, University of Minnesota Medical Center This free webinar provides an overview of allogeneic hematopoietic cell transplant as a treatment for high-risk MDS. This approach will be compared with other common treatment approaches, such as hypomethylating agents and other novel agents. To register, click here.

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Angel Aid Cares’ Rare Mother Meetup

August 11 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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SynGAP Research Fund’s Interpretation of Variants in SYNGAP1

August 19 @ 10:00 am - 11:00 am

Interpretation of Variants in SYNGAP1 August 19, 2021 with Eduardo Pérez Palma, PhD This webinar will feature a discussion of research related to genetic variants in SYNGAP1. Click here to sign up.

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September 2021

Angel Aid Cares’ Rare Mother Meetup

September 8 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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October 2021

Angel Aid Cares’ Rare Mother Meetup

October 13 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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The MDS Foundation’s CAR T Cell Therapy in MDS/AML Webinar

October 16 @ 12:00 pm - 1:00 pm

CAR T Cell Therapy in MDS/AML October 16, 2021 Speaker: David A. Sallman, MD, Moffitt Cancer Center This informational webinar will focus on a treatment approach called CAR T-cell therapy, a procedure in which the patient's own T-cells are extracted and modified in order to attack cancer. Learn about the latest advances in this form of treatment and the implications for people living with AML and MDS. To register, click here.

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November 2021

Angel Aid Cares’ Rare Mother Meetup

November 10 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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December 2021

Angel Aid Cares’ Rare Mother Meetup

December 8 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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January 2022

Angel Aid Cares’ Rare Mother Meetup

January 12, 2022 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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February 2022

Angel Aid Cares’ Rare Mother Meetup

February 9, 2022 @ 6:00 pm - 7:00 pm

Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup is meant as a safe place for Rare Mothers to connect and share with each other. There is no wrong way to participate in the Rare Mother Meetup; join for as long as you wish, with or without video. Click here to sign up.

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June 2022

HCU Network America, Organic Acidemia Association, and Propionic Acidemia Foundation’s 2021 Conference

June 26, 2022 - June 27, 2022
Bethesda Marriott, 5151 Pooks Hill Rd
Bethesda, MD 20814 United States
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HCU Network America, Organic Acidemia Association, and Propionic Acidemia Foundation's "LAND OF THE FREE, HOME OF THE BRAVE" 2021 Conference June 2022 The Land of the Free, Home of the Brave, 2021 Conference will serve as a chance for patients, patient families, caregivers, and medical professionals to converge and learn about the latest research related to acidemia and homocystinuria, as well as the newest advancements in treatment. Attendees will have the opportunity to support one another and help build community.…

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