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October 2023
The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group
Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.
Find out more »The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group
Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.
Find out more »Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group October 4, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum October 7, 2023 Philadelphia, PA Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…
Find out more »The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum October 14, 2023 Nashville, TN Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…
Find out more »National Organization for Rare Disorders’ 2023 NORD Breakthrough Summit
$399
2023 NORD Breakthrough Summit October 16-17, 2023 Registration is now open for NORD's Rare Diseases and Orphan Products Breakthrough Summit! On October 16-17 at the Marriott Marquis in Washington, DC, join hundreds of rare disease advocates, experts, and stakeholders from around the world to tackle the most pressing issues facing the rare disease community. This year's agenda features topics including the future of gene editing, the impact of the Inflation Reduction Act, harnessing the power of AI for diagnosis, diversity and equity in rare diseases, and so…
Find out more »The Center for Chronic Illness Living with Cystinosis Virtual Support Group
Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.
Find out more »November 2023
Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group November 1, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group
Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.
Find out more »The MDS Foundation’s MDS/MPN Overlap Syndrome Webinar
MDS/MPN Overlap Syndrome Webinar November 4, 2023 In this webinar, Dr. Angela Fleischman will explain myelodysplastic syndromes/myeloproliferative neoplasms overlap syndrome with an overview of the different features between MDS and MPN and their overlap and what these conditions mean for patients. Peter Löffelhardt will provide an overview of the Global International MPN Scientific Foundation. Attendees may listen to the simultaneous translation into Spanish of this webinar presented in English. After the presentation, there will be a live Q & A…
Find out more »The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group
Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.
Find out more »The Center for Chronic Illness Living with Urea Cycle Disorder Virtual Support Group
Web-Based Living with Urea Cycle Disorder Support Group A supportive, web-based peer support group for those living with urea cycle disorder. facilitated by Annie Moon, LMFT 3rd Wednesday of every other month 4-5 PM PT/7-8 PM ET To sign up for free, click here.
Find out more »The Center for Chronic Illness Living with Cystinosis Virtual Support Group
Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.
Find out more »December 2023
The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group
Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.
Find out more »The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group
Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.
Find out more »Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group
Adults with CF Who Received a Late Diagnosis Online Support Group December 6, 2023 at 8 PM Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.
Find out more »The Center for Chronic Illness Living with Cystinosis Virtual Support Group
Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.
Find out more »
