• Новости о редких заболеваниях
  • [email protected]
Facebook Instagram Linkedin Pinterest Twitter
  • Home Russian
  • Библиотека
  • болезни
  • Вопросы и ответы
  • Мемы
  • Насчет нас
  • партнеры
  • Пациент Достойный Письменные Подсказки
  • писатели
  • Поделитесь своей историей
  • Поделитесь своей историей
  • Познакомьтесь с нашей командой
  • Правила подачи контента, достойного пациента
  • Связаться с нами
  • Совместный контент на Patient Worthy
  • Меню
  • Home Russian
  • Библиотека
  • болезни
  • Вопросы и ответы
  • Мемы
  • Насчет нас
  • партнеры
  • Пациент Достойный Письменные Подсказки
  • писатели
  • Поделитесь своей историей
  • Поделитесь своей историей
  • Познакомьтесь с нашей командой
  • Правила подачи контента, достойного пациента
  • Связаться с нами
  • Совместный контент на Patient Worthy
    • Join PW

    Мемы

    1. Главная>
    2. Мемы

    Patient Worthy Memes

    It’s Hemochromatosis Awareness Month! This #Fact It’s Hemochromatosis Awareness Month! This #FactFriday, discover why too much iron isn’t always a good thing and learn the signs of this common genetic disorder. #HemochromatosisAwareness #Hemochromatosis #PatientWorthy
#ShareYourStory at the link in our bio!
    Meet Gracie, 36 yo from New York, who has been dia Meet Gracie, 36 yo from New York, who has been diagnosed with PCOS, obesity, PMDD, and sleep apnea. @gracie__gaga

Over the course of her entire life, Gracie has struggled with binge eating and food addiction, and has found herself wondering why she could never apply her intense work ethic and desire for achievement to her health. Once she found her way to GLP-1 medications, as well as a PCOS diagnosis, and armed with knowledge of the disease of obesity, her frustration became validated. While she works toward good health, Gracie is on a mission to educate her community about food noise, disordered eating, the stigma against the disease of obesity as well as use of GLP-1 medications, and other related issues. She has lost 80 pounds over 14 months, and has dedicated herself to her growing passion for running. 

Today, Gracie is parlaying her writing and multimedia background into content creation, writing for her own blog, “Gracie Fights Food Noise,” which documents her weight loss and health journey. 
You can find her blog here: https://marygracedonaldson.wixsite.com/fightingfoodnoise 
Socials: 
Facebook — Gracie Donaldson Cipriano
TikTok — @therealgracied

If you'd like to share your story, connect with us at the link in our bio!
    Living with Familial Chylomicronemia Syndrome. Rea Living with Familial Chylomicronemia Syndrome. Read Sylvie's story now at PatientWorthy.com
#PatientWorthy #PatientStory #FamilialChylomicronemiaSyndrome #FCS
    World🌎IVF Day| July 25th 1 in 6 people face inf World🌎IVF Day| July 25th
1 in 6 people face infertility, yet their journeys are often invisible.
Today, we honor every tear, every hope, every step of the IVF journey. Behind every embryo transfer, hormone injection, and waiting room is a person or couple longing for a child- and the courage it takes to keep going. Everyone deserves the chance to grow their family!
#WorldIVFDay #IVFSupport #HopeThroughScience #FertilityAwareness #PatientWorthy
    New Study: Extending Imaging Including the Heart U New Study: Extending Imaging Including the Heart Upon Arrival in E.R. Helps Determine Cause of a Stroke https://bit.ly/451HzSf Read now at PatientWorthy.com
#Patientworthy #StrokePrevention #StrokeResearch
    Today is International Self-Care Day—a perfect r Today is International Self-Care Day—a perfect reminder to prioritize your well-being, listen to your needs, and take time for yourself. Small acts of self-care can make a big difference in your overall health and happiness. You deserve it! Swipe to discover some self-care tips. 💚 #InternationalSelfCareDay #SelfCareMatters #PatientWorthy
    Imagine living in a world where even the slightest Imagine living in a world where even the slightest touch, hug, or bump can cause painful blisters and open wounds. This is the reality of those living with Epidermolysis Bullosa (EB)- a rare genetic disorder that causes the skin to be incredibly fragile. Those affected fight every day with incredible strength, courage, and resilience. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information! 
If you have a story to share, click the link in our bio.
#EBWarrior #RareDisease #ShareYourStory #EpidermolysisBullosa #PatientWorthy
    A Life Touched by Fragility: Living with Epidermol A Life Touched by Fragility: Living with Epidermolysis Bullosa. Read now at PatientWorthy.com
#PatientWorthy #EpidermolysisBullosa #EB #EBAwareness
    Alyssa's Story with Generalized Pustular Psoriasis Alyssa's Story with Generalized Pustular Psoriasis. Read now at PatientWorthy.com
#PatientWorthy #PatientStory #GeneralizedPustularPsoriasis #GPP
    Why Does Healthcare Feel Like an Obstacle Course f Why Does Healthcare Feel Like an Obstacle Course for Patients? An insightful piece by cancer survivor Sylvie Leotin.  Read now at PatientWorthy.com
#PatientWorthy #Cancer #Healthcare
    Castleman disease is a rare condition that involve Castleman disease is a rare condition that involves an overgrowth of cells in your body's lymph nodes. It's not cancer, but it can act like it - causing swollen lymph nodes, fatigue, and immune system issues. Awareness matters for early diagnosis and treatment! #WorldCastlemanDiseaseDay #RareDisease #ShareYourStory

If you're interested in sharing your story, click the link in our bio!
    Today is World Sjögren’s Day—a day to raise a Today is World Sjögren’s Day—a day to raise awareness for this complex autoimmune disease that causes dryness, fatigue, and pain, but often goes unrecognized. Let’s stand with the Sjögren’s community by spreading knowledge, promoting early diagnosis, and supporting those living with this invisible illness.  #WorldSjögrensDay #SjögrensAwareness #PatientWorthy
#ShareYourStory with us at the link in our bio!
    Whether it's a diagnosis, a daily struggle, or a v Whether it's a diagnosis, a daily struggle, or a victory- your experience matters! Be the voice that inspires change. Patient Worthy is looking for individuals who are interested in sharing their experiences with Epidermolysis Bullosa (EB). Message us, click the link in our bio, or visit patientworthy.com to share your story.
#EpidermolysisBullosa #PatientWorthy #ShareYourStory #RareDisease
    Finding Joy Through Art: How One North Texas Girl Finding Joy Through Art: How One North Texas Girl Thrives Despite a Rare Skin Condition. Read now at PatientWorthy.com
#PatientWorthy #EpidermolysisBullosa #EB
    Promising Progress: ANSELAMIMAB Advances in Phase Promising Progress: ANSELAMIMAB Advances in Phase III Trials for Light Chain Amyloidosis https://bit.ly/4o2Avxi Read now at PatientWorthy.com
#PatientWorthy #LightChainAmyloidosis #ClinicalTrials
    What causes Epidermolysis Bullosa? It’s much mor What causes Epidermolysis Bullosa? It’s much more than skin deep—EB starts with gene mutations that affect vital skin proteins. Learn the facts, spread awareness, and support research for a brighter future! #EpidermolysisBullosa #Genetics #RareDiseaseAwareness #EB #PatientWorthy
#ShareYourStory with us at the link in our bio!
    FDA Halts Sarepta’s ELEVIDYS Distribution and Cl FDA Halts Sarepta’s ELEVIDYS Distribution and Clinical Trials After Three Deaths Linked to Gene Therapy https://bit.ly/4eY8fHY Read now at PatientWorthy.com
#PatientWorthy #ELEVIDYS #Serepta #FDARejection #LimbGirdleMuscularDystrophy
    Today, on Fragile X Syndrome Awareness Day, we rec Today, on Fragile X Syndrome Awareness Day, we recognize the importance of early identification, genetic counseling, and ongoing research to support individuals with FXS. Fragile X reminds us how crucial science, compassion, and advocacy are in changing lives. If you are interested in sharing your story as a caregiver or someone living with FXS, click the link in our bio.
#FragileXAwareness #FXSResearch #GeneticTesting #PatientWorthy #EarlyIntervention
    FDA Halts Sarepta’s ELEVIDYS Distribution and Cl FDA Halts Sarepta’s ELEVIDYS Distribution and Clinical Trials After Three Deaths Linked to Gene Therapy. Read now at PatientWorthy.com
#PatientWorthy #ELEVIDYS #Serepta #FDARejection #LimbGirdleMuscularDystrophy
    Before a diagnosis, there's often a warning sign. Before a diagnosis, there's often a warning sign. That early symptom - subtle, vague, or easily dismissed - is called a prodrome. In rare diseases, recognizing it can make a difference. #RareDiseaseAwareness #RareWordOfTheWeek
    Moyamoya disease is a rare condition that often go Moyamoya disease is a rare condition that often goes undetected until it leads to serious symptoms like strokes or seizures. Raising awareness helps shorten the time to diagnosis and gives patients a clearer path forward. #MoyamoyaDisease #RareDiseaseAwareness #ShareYourStory
    FOLLOW PATIENT WORTHY ON INSTAGRAM

    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

    ¡Trabajemosjuntos!

    Asociarse con nosotros
    Presentarunahistoria
    Seruncolaborador

    Mantener al día

    Suscríbete a nuestroboletín
    Averiguarsobreeventosraros
    Inspírate con nuestros memes

    Aprendemás

    Sobrenosotros
    Enfermedades y condicionesraras
    Términos de uso
    Política de privacidad

    © Copyright Patient Worthy

    Sign Up With a Patient Worthy Account and Share Your Rare Story

    - OR -

    Sign Up For Our Patient Panel

    Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

    More Info

    We're Happy You're Here!

    What best describes you when it comes to rare disease? (check all that apply)

    What rare disease(s)/conditions are most important to you?

    Visit Home Page or

    Thank you for signing up for a Patient Worthy Account!

    Have a rare disease story to share? Let us know

    Share Story

    - OR -

    Sign Up For Our Patient Panel

    Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

    More Info