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    Patient Worthy Memes

    Today on Behçet’s Awareness Day, we’re recognizing Today on Behçet’s Awareness Day, we’re recognizing the strength of those living with a rare and often misunderstood disease. 
Behçet’s disease can affect many parts of the body and looks different for everyone living with it — which is why awareness, understanding, and support matter so much.
To everyone navigating flares, symptoms, appointments, and the unknown: your experiences are valid, and your story matters.

#BehçetsDisease #BehçetsDiseaseAwareness #RareDiseaseOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    Have you been impacted by Becker Muscular Dystroph Have you been impacted by Becker Muscular Dystrophy? Patient Worthy is looking for personal stories to help others feel supported and inspired. Your experience could make a meaningful difference! Share your patient journey with us through the link in our bio. #BeckerMuscularDystrophy #BMD #YourStoryMatters #ShareYourStory #PatientWorthy
    Expanding Hope for Rare Skin Disease: CHOP Becomes Expanding Hope for Rare Skin Disease: CHOP Becomes Sixth Treatment Center for Revolutionary ZEVASKYN Gene Therapy. Read now at PatientWorthy.com
#PatientWorthy #CHOP #EB #ZEVASKYN #GeneTherapy #RDEB
    May is Hepatitis Awareness Month. This observance May is Hepatitis Awareness Month. This observance serves as a time to raise awareness about hepatitis A, hepatitis B, and hepatitis C while encouraging testing, vaccination, and timely treatment. Viral hepatitis is a major public health threat and worse, hundreds of thousands of people in the United States don't know they are infected.

May 19 is National Hepatitis Testing Day. The goal of this day is to help raise awareness about viral hepatitis and to encourage more individuals to get tested for hepatitis and learn their status. The CDC recommends all adults aged 18 years and older be screened at least once in their lifetimes for hepatitis B and hepatitis C.

Help break the stigma by sharing your hepatitis story at the link in our bio!

#Hepatitis #HepatitisAwarenessDay #PatientWorthy
    💙 Understanding Becker Muscular Dystrophy (BMD) Be 💙 Understanding Becker Muscular Dystrophy (BMD)
Becker Muscular Dystrophy is a genetic condition that leads to progressive muscle weakness, most often affecting the hips, thighs, and legs. Everyday activities like climbing stairs, running, or maintaining balance can become more difficult over time.
While BMD progresses more slowly than other forms of muscular dystrophy, it can also impact the heart and overall mobility. Early awareness, ongoing care, and support can make a meaningful difference in quality of life.
✨ Let’s raise awareness, support those affected, and continue advocating for research and better treatments.
If you'd like to share your story with us, click the link in our bio!
#BeckerMuscularDystrophy #BMDawareness #MuscularDystrophy #ShareYourStory #PatientWorthy
    Sometimes the plans change before the day even sta Sometimes the plans change before the day even starts.
To everyone whose body has ever said “not today,” you’re not alone. 🤍

#RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllness #ChronicIllnessAwareness #YouAreNotAlone #PatientWorthy
    For many people living with rare neurological or v For many people living with rare neurological or vestibular conditions, the world may appear to move or bounce even when standing still. Symptoms like this can affect balance, reading, walking, driving, and everyday activities in ways that are often invisible to others. Raising awareness helps bring attention to the complex ways rare diseases can affect vision and neurological function, and why understanding these experiences matters.

#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    When Breakthrough Drugs Need a New Home: Inside th When Breakthrough Drugs Need a New Home: Inside the Arvinas-Rigel Partnership. Read now at PatientWorthy.com
#PatientWorthy
    Ready to learn more about Becker Muscular Dystroph Ready to learn more about Becker Muscular Dystrophy? This week, Patient Worthy is delivering educational content and insights to deepen understanding and foster community support.

Explore our resources on patientworthy.com and socials. And if you're living or caring for someone with Becker Muscular Dystrophy, we want to hear from you—click the link in bio to share your story!

#BeckerMuscularDystrophy #BeckerMuscularDystrophyAwareness #BMD #ShareYourStory #PatientWorthy
    Meet Ann! Ann is living with Short bowel syndrome, Meet Ann!
Ann is living with Short bowel syndrome, a rare condition where the body can’t absorb enough nutrients because a large portion of the small intestine is missing or not functioning properly. It often requires lifelong nutritional support and careful management, impacting everyday life in ways many people don’t see.
We’re honored to share Ann’s story to help bring more awareness to this condition—because understanding leads to better support, earlier recognition, and stronger community for those navigating it every day.

#ShortBowelSyndrome #ShortBowelSyndromeAwareness #SBS #ShareYourStory #PatientWorthy
    💚May is Mental Health Awareness Month 💚 Each year 💚May is Mental Health Awareness Month 💚
 Each year, 1 in 5 adults experience a mental health condition, yet stigma still prevents many from seeking the care and support they need. It’s time to change that.
Take a moment to check in on yourself and those around you. By normalizing conversations about mental health and encouraging open, honest dialogue, we can help break down barriers. Remember, there is strength in asking for help and reaching out when you need support. You are not alone. Together, we can create a culture of understanding, compassion, and support.
#MentalHealthAwarenessMonth #EndTheStigma #MentalHealthMatters #YouAreNotAlone #PatientWorthy
    Breaking Through Resistance: New Cancer Combo Show Breaking Through Resistance: New Cancer Combo Shows Promise as Biotech Pipeline Advances. Read now at PatientWorthy.com
#PatientWorthy
    Managing EB often goes far beyond skincare alone. Managing EB often goes far beyond skincare alone. Daily routines, nutrition support, pain management, wound care, and preventing complications can all become part of life with epidermolysis bullosa. 💙
While every experience is different, raising awareness about the realities of treatment and ongoing care can help foster more understanding and support for the EB community.

If you're interested in sharing your story with Epidermolysis Bullosa, click the link in our bio to learn more!

#EB #EpidermolysisBullosa #EpidermolysisBullosaAwareness #RareDisease #ShareYourStory #PatientWorthy
    🩵💚May 17th is Neurofibromatosis Awareness Day! Ne 🩵💚May 17th is Neurofibromatosis Awareness Day!

Neurofibromatosis (NF) refers to a group of genetic conditions that cause tumors to grow in the brain, spine, and on nerves throughout the body. 

NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN). NF impacts everyone differently and may lead to blindness, deafness, bone abnormalities, disfigurement, learning challenges, disabling pain, or cancer.

About half of people with NF inherit the condition from one of their parents. The other half develops NF due to a spontaneous change in the gene. There is no cure for NF1 or SWN, but treatments are available to help manage symptoms and address other conditions that may develop.

On May 17th, wear blue and green in honor of those living with and affected by NF, and share your story with us to help spread awareness about this rare condition. Every action helps build progress for the NF community!

Click the link in our bio to share your story!

#Neurofibromatosis #NFAwarenessDay #NF1 #NF2 #PatientWorthy

Sources: Children's Tumor Foundation & NIH
    🧠 International Oligodendroglioma Day 🧠 Today we r 🧠 International Oligodendroglioma Day 🧠
Today we raise awareness for oligodendroglioma, a rare type of brain tumor, and stand with the patients, caregivers, and families navigating its impact every day.
By sharing stories, supporting research, and spreading understanding, we help shine a light on a condition that deserves greater visibility and compassion.
Together, we can amplify voices, foster connection, and support hope within the brain tumor community.
#InternationalOligodendrogliomaDay #Oligodendroglioma #BrainTumorAwareness #RareDiseaseAwareness #PatientWorthy #ShareYourStory
    Today on HAE Awareness Day, we’re recognizing the Today on HAE Awareness Day, we’re recognizing the strength of those living with hereditary angioedema (HAE) — a rare condition that can cause sudden, painful, and unpredictable swelling attacks.
For many, HAE impacts far more than what people can see. It can affect daily routines, relationships, work, school, and the simple comfort of knowing what tomorrow will look like.
Today is about spreading awareness, encouraging understanding, and reminding the HAE community that their experiences matter and their voices deserve to be heard.

#HAEAwarenessDay #HAEAwareness #HAE #Active4HAE #PatientWorthy
    One bite can change everything. For 33 million Am One bite can change everything.

For 33 million Americans with food allergies, “just try it” isn’t harmless. It’s anaphylaxis. It’s ER visits. It’s reading every label, carrying epinephrine everywhere, and teaching everyone around you how to save your life.

Food Allergy Awareness Week is about more than awareness. It’s about action:

Ask before you share food.
Read labels, even if you’ve bought it before.
Take “no thank you” seriously.
Learn the signs of anaphylaxis and how to use an EpiPen.
Never pressure someone to eat something.

Inclusion tastes better than exclusion. And safety should never be optional.

#FoodAllergyAwarenessWeek #Anaphylaxis #PatientWorthy
    TSC is a genetic disorder that causes benign tumor TSC is a genetic disorder that causes benign tumors to grow in the brain, heart, kidneys, lungs, skin, and eyes. 1 million people worldwide live with it. Many spend years searching for answers before diagnosis.

TSC Global Awareness Day is about changing that. See the signs. Fund the research. Support the families navigating appointments, medications, and uncertainty every single day. Because awareness creates earlier diagnosis. Earlier diagnosis creates better outcomes. And no one should face TSC alone.

#TSCGlobalAwarenessDay #TuberousSclerosisComplex #PatientWorthy
    A diagnosis can change everything — but for indivi A diagnosis can change everything — but for individuals living with Epidermolysis Bullosa (EB), getting answers is often the first step toward proper care, support, and improved quality of life. Because EB affects the skin on a genetic level, specialized testing helps identify the exact type, guide treatment decisions, and monitor complications early. Awareness and education matter, especially for rare conditions that are often misunderstood. Every diagnosis tells a story, and every story deserves understanding, advocacy, and hope. 💙
#EpidermolysisBullosa #EBAwareness #PatientWorthy
    What is MPS? Mucopolysaccharidoses (MPS) are lysos What is MPS?
Mucopolysaccharidoses (MPS) are lysosomal storage diseases caused by the body’s inability to produce enough of a specific enzyme needed to break down long chains of sugar molecules called glycosaminoglycans (GAGs). When these molecules are not properly broken down, they accumulate in cells throughout the body, leading to progressive damage affecting multiple organs and systems. 
 • MPS can affect the brain, heart, lungs, bones, joints, eyes, hearing, and liver
 • Symptoms and severity vary widely by type of MPS and among individuals
 • Many forms are progressive, and early symptoms can be subtle or mistaken for common conditions—making awareness and early diagnosis critical
#MPSAwarenessDay #Mucopolysaccharidosis #RareDiseaseAwareness #PatientWorthy
    Still trying to figure out how to unsubscribe... Still trying to figure out how to unsubscribe...

#ChronicIllness #ChronicIllnessHumor #RareDisease #MedicalHumor #PatientWorthy
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    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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