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Living with myelofibrosis and anemia can affect so

🎀 This Saturday, October 3rd, Patient Worthy is pr

When certainty isn’t always possible, maybe can be

Being diagnosed with Metabolic dysfunction-associa

What word has taken on a completely different mean

The view from the top may look effortless, but eve

Early findings from a Phase I/II clinical trial su

Have you been diagnosed with myelofibrosis and exp

✨Living with a chronic illness can be frustrating

Living with myelofibrosis can mean navigating more

Singapore has officially approved Wegovy for anoth

This week, Patient Worthy is shining a light on My

Never forget that your voice matters. Your experie

A uHCC diagnosis can bring many questions, especia

🤩September is Patient Appreciation Month🤩 At Patie

For people navigating complex or rare conditions,

The future for recovery and repair of PNIs (periph

Getting a diagnosis of hepatocellular carcinoma ca

Hereditary angioedema (HAE) is a rare genetic cond

Nobody grows up thinking they'll become an expert

Every breath matters. On #WorldLungDay, take a mom

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Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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