Patient Worthy Memes

When David and Melissa Wickham were expecting, the

Today is #WorldIBDDay! This year, join the @crohns

It’s May — and you know what that means! This

Patients, both children and adults, are being call

It is important to recognize the symptoms of #meni

For the last 52 years, people with #WilsonDisease

Currently, it is difficult to determine when a rel

Today is #WishboneDay — a social movement and aw $Today is #WishboneDay — a social movement and awareness day for those with Osteogenesis Imperfecta (OI). The aim of Wishbone Day is to raise awareness of the challenges, solutions, and daily experiences of people with OI. ✨ #OsteogenesisImperfecta, sometimes known as “brittle bone disease,” comprises of a group of inherited disorders characterized by fragile bones. There are four main types: I, II, III, and IV. ✨ In most cases, COL1A1 or COL1A2 genes cause OI. ✨ OI is incredibly variable. Some individuals may have many bone fractures while others may experience very few. ✨ Potential symptoms or features include bone fractures, blue sclera, middle or inner ear abnormalities (and hearing impairment), hypotonia, respiratory insufficiency, or scoliosis. This does not comprise of the full list of features or symptoms. Learn more about OI through @oioife @wishboneday If you or someone you love has OI, what would you like to share or raise awareness of? Drop the info below! ⬇️ . . . . #PatientWorthy #OsteogenesisImperfectaAwareness #Genetics #GeneticDisorder #GeneticDisease #RareDisease #RareDiseaseAwareness #BrittleBones$

While pursuing her PhD in Pharmacology & Toxicolog

“You Are Not Alone — Validating the #Caregiver

On our website, @coachtom12 wrote a number of tips

Today is #UndiagnosedChildrensDay. Together, we ca

#DidYouKnow — today, we’re going to be talking

Do you or someone you love have post-transplant ly

Today is AML World Awareness Day, which aims to re

Today, April 19, is Congenital Diaphragmatic Herni

Happy Easter 🐰🐣 from your friends at Patient

Today is #InternationalPompeDay — a day to unite

Exciting news — the @glut1deficiencyfoundation i

“When you talk about [your condition], a lot of