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    Patient Worthy Memes

    Patients & Caregivers Needed: Have you or a loved Patients & Caregivers Needed: Have you or a loved one been impacted by Hereditary Transthyretin Amyloidosis (hATTR Amyloidosis) or Transthyretin Amyloid Cardiomyopathy (ATTR-CM)?
At Patient Worthy, we are looking for patients and caregivers who are willing to share their experiences living with ATTR. Whether you're navigating symptoms, pursuing a diagnosis, managing treatment, or supporting a family member through their healthcare journey, your story matters.
Why is sharing your story so important? Because personal experiences have the power to: ✨ Raise awareness and improve understanding of ATTR ✨ Help others feel less isolated in their journey ✨ Empower newly diagnosed patients and families ✨ Inspire hope, connection, and advocacy within the community ✨ Encourage meaningful conversations between patients, caregivers, and healthcare providers
Every journey is unique, and your voice could provide comfort, guidance, and encouragement to someone facing similar challenges.
💬 If you're interested in sharing your story, we'd love to hear from you.
Click the link in our bio to help make a difference in the ATTR community.
#PatientWorthy #Amyloidosis #hATTR #ATTRCM #ATTRAmyloidosis #RareDisease #RareDiseaseAwareness #PatientAdvocacy #CaregiverSupport #ShareYourStory
    Disability Pride Month is a time to celebrate the Disability Pride Month is a time to celebrate the strength, diversity, and resilience of the disability community.
Every person's story deserves to be seen, heard, and respected. This month is about honoring identities, challenging stereotypes, promoting accessibility, and recognizing that disability is something to be embraced—not hidden.
Let's continue building a world where everyone belongs, barriers are broken down, and every voice matters.

#DisabilityPrideMonth #DisabilityPride #Accessibility #Inclusion #DisabilityAwareness #InclusiveCommunity #DisabilityAdvocacy #AccessibilityMatters #CelebrateDifferences #PatientWorthy
    Hidradenitis Suppurativa (HS) is more than a skin Hidradenitis Suppurativa (HS) is more than a skin condition—it's a chronic inflammatory disease that can affect physical health, emotional well-being, and quality of life. Because HS is often misunderstood, raising awareness is an important step toward earlier diagnosis, better support, and improved outcomes.
Follow along to explore some of the common symptoms of HS, and what researchers currently know about its causes. By learning more, we can help reduce stigma, encourage meaningful conversations, and support those living with this challenging condition.
💬 Have you or someone you know been impacted by HS? Click the link in our bio to share your story and help us spread awareness.
 https://ow.ly/bQYn50ZkMQY
#HidradenitisSuppurativa #HSAwareness #PatientWorthy #PatientEducation #PatientAdvocacy #ChronicIllnessAwareness #InvisibleIllness #HealthAwareness #ShareYourStory #HSWarrior #StrongerTogether
    Group B Streptococcus (Group B Strep) is a type of Group B Streptococcus (Group B Strep) is a type of bacteria that can naturally live in the body without causing symptoms, but during pregnancy it can sometimes be passed to a baby during birth and lead to serious complications if not identified and treated.
The important message is simple: screening saves lives. Routine testing during pregnancy helps identify Group B Strep early so preventive antibiotics can be given during labor when needed—significantly reducing the risk of infection in newborns.
Awareness means empowerment, prevention, and protection for both parent and baby. 💙
#GroupBStrepAwareness #GBSAwarenessMonth #PatientWorthy
    Do you have hidradenitis suppurativa (HS)? We'd lo Do you have hidradenitis suppurativa (HS)? We'd love to hear from you!
Your experiences can help raise awareness, educate others, and make a difference for people navigating life with HS.
If you're interested in sharing your journey, click the link in our bio. Every story has the power to inspire, inform, and help others feel less alone.
#HidradenitisSuppurativa #HSAwareness #PatientStory #PatientAdvocacy #PatientWorthy
    ✨ "You are strong when you know your weaknesses. Y ✨ "You are strong when you know your weaknesses. You are beautiful when you appreciate your flaws."
Your struggles do not define you. Your scars tell a story of resilience. Your setbacks do not diminish your worth. Every day you face uncertainty, adapt to challenges, and keep moving forward is a testament to the courage you carry within.
Today, give yourself grace. Celebrate who you are—not despite your imperfections, but because of them.
You are strong. You are beautiful. You are enough.
Tag someone in the rare and chronic illness community who needs this reminder today.
#RareDisease #ChronicIllness #ChronicIllnessWarrior #RareDiseaseAwareness #PatientAdvocacy #PatientVoice #InvisibleIllness #Resilience #Hope #Strength #SelfAcceptance #StrongerTogether #PatientWorthy
    Sarcoma may be rare, but every diagnosis matters. Sarcoma may be rare, but every diagnosis matters. This Sarcoma Awareness Month, we're helping shine a light on the importance of awareness, early recognition, and supporting everyone affected by this disease.
#RareDiseaseOfTheWeek #SarcomaAwarenessMonth #SarcomaAwareness #Sarcoma #CancerAwareness #RareCancer #RareDisease #PatientWorthy
    Hidradenitis suppurativa (HS) is more than just a Hidradenitis suppurativa (HS) is more than just a skin condition. It is a chronic inflammatory disease that can cause painful lumps, abscesses, and scarring, most often in areas where skin rubs together, such as the underarms, groin, buttocks, and under the breasts.
HS can affect people of all backgrounds, but it most commonly develops after puberty and is more frequently diagnosed in women. Because symptoms are often misunderstood or dismissed, many people face delays in getting the care and support they need.
Every HS journey is different, and every story matters.
If you're living with HS, we'd love to hear from you. Click the link in our bio to get involved!
#HidradenitisSuppurativa #HSAwareness #ChronicIllness #PatientAdvocacy #PatientWorthy #InvisibleIllness #RareDiseaseCommunity #ShareYourStory #PatientWorthy
    Living with Peripheral Nerve Injury (PNI) can brin Living with Peripheral Nerve Injury (PNI) can bring unique challenges, but knowledge, awareness, and support can make a difference. By learning more about PNI and sharing experiences, patients, caregivers, and advocates can help build a stronger, more informed community.
💙 Stay informed. Stay connected. Stay inspired.
Follow Patient Worthy for more PNI facts, resources, and patient stories.
if you’re living with PNI or caring for someone who is, we’d love to hear your story—click the link in our bio to share your journey and help inspire others in the community.
#PNI #PeripheralNerveInjury #PatientWorthy #ShareYourStory #StrongerTogether #PatientAdvocacy
    New reports suggest that Attruby, a treatment for New reports suggest that Attruby, a treatment for ATTR-CM, may also help preserve the kidney function of patients living with the condition. Read more at patientworthy.com or using the link in our bio!

#PatientWorthy #ShareYourStory #ATTRCM #ATTR #Amyloidosis #Attruby
    Follow along on our website and Patient Worthy soc Follow along on our website and Patient Worthy social channels as we explore the symptoms, challenges, treatment journeys, and real-life experiences of individuals living with Hidradenitis Suppurativa (HS).
If you're living with HS or caring for someone who is, we'd love to hear your story. Click the link below, to share your journey and help inspire, educate, and empower others in the community.
 https://ow.ly/3GCR50ZkM71 
💜 Together, we can raise awareness, amplify patient voices, and support those navigating life with Hidradenitis Suppurativa.
#HidradenitisSuppurativa #HSAwareness #PatientWorthy #PatientEducation #PatientAdvocacy #ChronicIllnessAwareness #PatientVoice #ShareYourStory #RareDiseaseCommunity #StrongerTogether #HSWarrior #InvisibleIllnessAwareness
    Patient Worthy is honored to present to you Helen! Patient Worthy is honored to present to you Helen!
Helen is a breast cancer advocate diagnosed four years ago at age 56 with de novo Stage IV breast cancer, with metastasis to the bones, brain lining, and most recently the liver.
Beyond her diagnosis, she is a proud parent to her beloved dog, Charlie—a “very spoiled, smiling, and singing” companion who brings joy to her everyday life.
Through her journey, Helen encourages self-advocacy, seeking second opinions, and speaking up in your own care. Her hope is simple: that her story inspires even one person to get a mammogram and take that next step in awareness and early detection.
Her message is powerful and unwavering—be persistent, challenge the status quo when needed, and remember: she may have cancer, but cancer does not define her.
Blessings and stay strong. 💗 If you want to share your story, click the link in our bio today! #ShareYourStory #BreastCancer #PatientWorthy
    Ready to learn more about Peripheral Nerve Injury Ready to learn more about Peripheral Nerve Injury (PNI)?
This week, Patient Worthy is sharing educational content, patient perspectives, and helpful resources to raise awareness and deepen understanding of PNI.
Follow along on patientworthy.com and across our social channels as we explore the symptoms, challenges, and real-life experiences of those affected by PNI. And if you’re living with PNI or caring for someone who is, we’d love to hear your story—click the link in our bio to share your journey and help inspire others in the community.
💙 Together, we can build awareness, foster connection, and support those navigating life with PNI.
#PNI #PeripheralNerveInjury #PatientWorthy #PatientEducation #PatientAdvocacy #NerveHealth #ChronicIllnessAwareness #StrongerTogether #ShareYourStory #PatientVoice
    A Small Win I'm Celebrating Today Is... When you' A Small Win I'm Celebrating Today Is... 
When you're living with a rare or chronic illness, even the smallest victories can be worth celebrating. Some days, a win might look like getting out of bed, making it through a challenging appointment, taking a walk, managing symptoms, or simply finding a reason to smile.
No achievement is too small when you're navigating a health journey that requires strength, resilience, and courage every single day.
Today, we're celebrating the wins—big and small—that remind us of how far we've come.
💬 Share yours in the comments below and let's encourage one another. Your victory may be exactly the inspiration someone else needs today.
#RareDisease #ChronicIllness #PatientAdvocacy #RareDiseaseAwareness #ChronicIllnessWarrior #PatientVoice #InvisibleIllness #Resilience #Hope #SmallWins #StrongerTogether #CommunitySupport #PatientWorthy
    Living with a chronic or rare condition often mean Living with a chronic or rare condition often means becoming your own researcher.
From understanding medical terminology to comparing treatment options and navigating insurance, many patients spend countless hours learning about their condition so they can make informed decisions about their care.
Knowledge doesn't replace medical expertise—but it can empower patients to ask questions, understand their options, and advocate for themselves!
#ChronicIllness #RareDisease #InvisibleIllness #YouAreNotAlone #PatientWorthy
    We've all been there. You tell yourself you'll mak We've all been there. You tell yourself you'll make the appointment after the long weekend... and suddenly it's time to follow through.
If this feels a little too relatable, consider this your friendly reminder to make that call. Your future self will thank you.
 #PatientLife #WellnessReminder #PatientWorthy
    Treatment for a peripheral nerve injury isn't one- Treatment for a peripheral nerve injury isn't one-size-fits-all. While some nerves can heal over time with rehabilitation and supportive care, others may require surgery to restore function.
Recovery can take patience, consistency, and the right care plan—but understanding your treatment options is an important first step. 
Have you or a loved one experienced a peripheral nerve injury? Share your experience with us through the link in our bio to help others feel less alone.
#PeripheralNerveInjury #PNI #NerveHealth #PatientAdvocacy #PatientWorthy
    Happy 4th of July from the Patient Worthy team! Happy 4th of July from the Patient Worthy team!
    In 2016, Harolyn began experiencing concerning sym In 2016, Harolyn began experiencing concerning symptoms including leg and arm numbness, falls, difficulty swallowing, drooping eyes, and weight loss. She ultimately ended up in a wheelchair. As an African American woman, Harolyn felt dismissed and unheard. She was eventually diagnosed with myasthenia gravis in 2020. It was a long road, but Harolyn found a treatment plan that worked for her, and she is now able to walk and live a purposeful life. Today, she is a motivational speaker and author and runs a non-profit for women. Her book "Please Excuse Me While I Take Off My Bra" is available on Amazon. And check out her new online magazine, Rooted & Rising. Thank you @harolynambassadorofjoy for sharing your story with us!

Do you have a story to share? Click the link in our bio!

#MyastheniaGravis #gMG #PatientStories #PatientWorthy
    💙 Diagnosis Is More Than a Test—It's a Step Toward 💙 Diagnosis Is More Than a Test—It's a Step Toward Understanding
For people living with Peripheral Nerve Injury (PNI), getting answers can be an important part of the journey. Understanding the cause of symptoms can help patients feel more informed, empowered, and prepared to discuss their care with their healthcare team.
While the path to a diagnosis may look different for everyone, having the right information can open the door to better symptom management and support. Just as importantly, connecting with others who share similar experiences can provide encouragement and remind us that we're not alone. Follow Patient Worthy across our social channels as we explore the symptoms, challenges, and real-life experiences of those affected by PNI. And if you’re living with PNI or caring for someone who is, we’d love to hear your story—click the link in our bio to share your journey.
#PNI #PeripheralNerveInjury #DiagnosisJourney #PatientAdvocacy #PatientWorthy #NerveHealth #HealthAwareness #ShareYourStory
    Grief doesn't only come after loss—it can also com Grief doesn't only come after loss—it can also come with the life you imagined but didn't get to live.
Many people with chronic illnesses or rare diseases grieve the plans they had, the energy they once had, the independence they expected, or the future they pictured for themselves. Those feelings can exist alongside hope, resilience, and joy.
Making space for that grief doesn't mean you've given up. It means you're acknowledging a very real part of the journey.
#ChronicIllness #InvisibleIllness #RareDisease #YouAreNotAlone #Quote #PatientWorthy
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    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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