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    Patient Worthy Memes

    Some of the greatest challenges are the ones no on Some of the greatest challenges are the ones no one else can see. Many people living with chronic illnesses, rare diseases, and other health conditions navigate pain, fatigue, and uncertainty behind the scenes while doing their best to carry on with daily life.
A little compassion can go a long way. Taking the time to listen, believe, and support someone may make more of a difference than you realize.
#InvisibleIllness #ChronicIllness #RareDisease #YouAreNotAlone #PatientWorthy
    Every cancer journey is unique, and so is the scie Every cancer journey is unique, and so is the science behind it.
B7‑H3 solid tumors and esophageal squamous cell carcinoma (ESCC) are areas where researchers are working hard to better understand the disease and bring forward more personalized, thoughtful approaches to care.
While treatment today is guided by established standards, there is growing momentum toward therapies that are designed to better match each patient’s specific cancer. One area of interest includes B7‑H3, a marker found on many tumor cells that may open the door to more targeted options in the future.
For patients and families, this progress matters—it means more conversations, more possibilities, and more hope on the horizon. Visit patientworthy.com for more information on B7‑H3 solid tumors and esophageal squamous cell carcinoma (ESCC).
#PatientWorthy #B7H3 #ESCC #CancerResearch #PatientVoice #HopeInHealth #CancerCommunity
#ShareYourStory
    If you could improve just one part of the healthca If you could improve just one part of the healthcare journey, which would you choose?
📋Faster test results
💊Easier access to treatment
 
Every step matters, and for many patients, even small improvements can make a meaningful difference. Tell us which one you'd choose and why in the comments.
#PatientAdvocacy #PatientSupport #PatientWorthy
    Have you or a loved one been diagnosed with a B7-H Have you or a loved one been diagnosed with a B7-H3-positive tumor?
We're looking to connect with individuals who may be interested in sharing their experiences. Every patient journey is unique, and sharing your story can help bring greater awareness to the realities of living with cancer.
If you're interested in learning more, click the link in our bio!
#B7H3 #SolidTumors #CancerAwareness #CancerCommunity #PatientAdvocacy #Oncology #ShareYourStory #PatientWorthy
    Researchers are continuing to explore new ways to Researchers are continuing to explore new ways to treat cancer, and one area receiving growing attention is B7-H3. While many people have never heard of it, this protein is found at high levels in a wide range of cancers and is being studied as a potential target for future therapies.
Swipe through to learn what B7-H3 is, where it's most commonly found, and why it's becoming an important focus in cancer research.
If you're interested in sharing your story, click the link in our bio. 
#B7H3 #SolidTumors #CancerAwareness #CancerCommunity #PatientAdvocacy #Oncology #ShareYourStory #PatientWorthy
    Finish the sentence: “The hardest part isn’t the d Finish the sentence:
“The hardest part isn’t the diagnosis, it’s ______.”
Living with a health condition goes far beyond the moment of diagnosis. For many patients, the real challenges come afterward—navigating treatment decisions, managing daily life, or finding the right support system.
We want to hear from you.
💬 Share your answer in the comments
💙 Your experience might help someone else feel seen, understood, and less alone
#PatientWorthy #PatientVoice #HealthJourney #ChronicIllness #ShareYourStory #RareDisease
    Whether you're a patient making choices about your Whether you're a patient making choices about your own care or a caregiver helping a loved one navigate appointments, treatments, and difficult conversations, every decision carries weight. From researching options and asking questions to weighing risks and benefits, these moments require time, emotional energy, and resilience.
There isn't always a clear or easy answer. Sometimes, the most important thing you can do is ask questions, seek trusted guidance, and remember that informed decisions don't have to be made alone.
What advice would you give someone facing a difficult decision? Share your thoughts in the comments- you never know who might need to hear them. 
#PatientAdvocacy #CaregiverSupport #PatientWorthy
    Some changes happen so gradually that you don't no Some changes happen so gradually that you don't notice them until you stop and look back.
The path after a diagnosis is rarely the one anyone would choose, but it often brings unexpected lessons, perspectives, and growth along the way. Even on the hardest days, there may be moments that remind you just how far you've come.
#ChronicIllness #RareDisease #InvisibleIllness #YouAreNotAlone #PatientWorthy
    Focus of the Week: B7-H3 Solid Tumors Follow along Focus of the Week: B7-H3 Solid Tumors
Follow along on the Patient Worthy website and across our social channels as we explore the evolving landscape of B7‑H3 solid tumors and the emerging science shaping treatment approaches for these cancers.
Throughout the week, we’ll be sharing educational content, patient perspectives, treatment journeys, and real-life experiences to help raise awareness and deepen understanding of how B7‑H3 is being targeted in cancer research, particularly through promising investigational therapies like ifinatamab deruxtecan (I‑DXd).
If you’re living with a B7‑H3–expressing cancer or caring for someone who is, we would love to hear your story. Sharing your healthcare journey can help educate others, provide hope to newly diagnosed patients, and remind the community that they are not alone.
Click the link in our bio to share your story and help inspire, educate, and empower others.
#PatientWorthy #B7H3 #SolidTumors #CancerResearch #PrecisionMedicine #CancerAwareness #ShareYourStory #CancerCommunity
    "Sometimes the biggest difference between where yo "Sometimes the biggest difference between where you are and where you want to be is simply deciding to begin. The perfect time may never come, but every small step you take today brings you closer to the life you're working toward. Your future self will thank you for the courage you showed today. 
✨Start before you're ready. Progress always begins with one step.✨ 
#MotivationMonday #StartToday #PatientWorthy
    Everyone talks about appointments, treatments, and Everyone talks about appointments, treatments, and test results—but what part of the healthcare journey do you think gets overlooked?
Is it the emotional toll? The financial burden? The waiting? The impact on relationships, work, or mental health?
Share your thoughts in the comments. ⬇️
    Xerostomia is more than just feeling thirsty—it ca Xerostomia is more than just feeling thirsty—it can have a meaningful impact on everyday life. It can make speaking, swallowing, tasting food, and maintaining good oral health more difficult and may be associated with certain medical conditions, medications, or disorders affecting the salivary glands. Raising awareness of symptoms like xerostomia helps build understanding of how even less visible symptoms can affect a person's daily life and overall well-being.
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    Some symptoms are easy to overlook. Others can slo Some symptoms are easy to overlook. Others can slowly become part of your "normal." But persistent muscle weakness, fatigue, or difficulty with everyday movements deserve attention.
Myositis is a group of rare inflammatory muscle diseases that can affect people differently. While the exact cause isn't always known, factors such as autoimmune conditions, certain infections, medications, or genetics may play a role. Learning the signs can help support earlier conversations with a healthcare provider and, ultimately, an earlier diagnosis.
Awareness begins with recognizing when something doesn't feel right.
Click the link in the bio to share your story today with us today!
#Myositis #RareDisease #PatientWorthy
    The Invisible Job: The Record Keeper 💙 It’s not so The Invisible Job: The Record Keeper 💙
It’s not something patients are taught, but something they quickly learn: how to become the keeper of their own health story.
Appoint­ments, test results, medications, symptoms, timelines—so much of care depends on the details patients track and remember along the way. Much of this work happens quietly, outside the exam room, and often goes unrecognized.
Yet this careful organization makes a real difference. It helps connect the dots, supports better conversations with providers, and ensures that nothing important gets lost in the process.
To every patient carrying this responsibility—you see the full picture, and that matters more than you know.
#PatientWorthy #PatientVoice #ChronicIllness #RareDisease #HealthcareJourney #TheInvisibleJob
    Every myositis journey is unique, and every story Every myositis journey is unique, and every story has the power to make a difference. By sharing your experience, you can help raise awareness, foster understanding, and ensure the voices of those living with myositis are heard.
Visit the link in our bio to share your story!
#Myositis #MyositisAwareness #ShareYourStory #PatientWorthy
    Our brains shape every thought, memory, movement, Our brains shape every thought, memory, movement, and emotion, yet brain health is often overlooked until challenges arise. On World Brain Day, we recognize the millions of individuals worldwide living with neurological conditions and honor their resilience, strength, and determination.
Raising awareness about brain health, neurological diseases, and the importance of timely diagnosis and care can help improve lives and foster a more supportive, informed community. Whether you are living with a neurological condition, caring for a loved one, or advocating for better understanding, your voice matters.
Today, let's commit to learning more, supporting one another, and prioritizing brain health at every stage of life.
💙 Because every brain matters.
#WorldBrainDay #BrainHealth #Neurology #BrainAwareness #NeurologicalDisorders #PatientAdvocacy #HealthAwareness #RareDisease #PatientWorthy #StrongerTogether
    Myositis is more than muscle weakness—it's a rare Myositis is more than muscle weakness—it's a rare autoimmune disease that can make everyday activities increasingly difficult. Raising awareness helps more people recognize the symptoms, understand the condition, and feel less alone in their journey.
Every share helps educate someone who may have never heard of myositis before. If you'd like to share your story with us, click the link in our bio!
#Myositis #RareDisease #AutoimmuneDisease #ChronicIllness #ShareYourStory #PatientWorthy
    Living with a chronic illness often means navigati Living with a chronic illness often means navigating doctor appointments, medications, treatments, symptoms, insurance hurdles, and the unpredictability that comes with managing a long-term condition. It's not about being "high maintenance"—it's about doing what it takes to care for your health and well-being.
For millions of people living with chronic and rare diseases, the daily effort behind the scenes can be exhausting, invisible, and often misunderstood. A little compassion, patience, and understanding can go a long way.
#ChronicIllness #InvisibleIllness #RareDisease #ChronicDiseaseAwareness #PatientWorthy #ShareYourStory
    Progeria is incredibly rare, but the children and Progeria is incredibly rare, but the children and families living with it deserve to be seen, supported, and understood. 
Every diagnosis has a story, and every story has the power to raise awareness, inspire research, and bring hope for the future. By learning more and sharing reliable information, we can help create a more informed and compassionate community!
#Progeria #RareDiseaseOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    Follow along on the Patient Worthy website and acr Follow along on the Patient Worthy website and across our social channels as we shine a light on the realities of living with myositis.
Throughout the week, we'll be sharing educational content, patient perspectives, treatment experiences, symptom awareness, and real-life stories to help foster a deeper understanding of this rare group of autoimmune diseases and their impact on patients and families.
If you're living with myositis—or caring for someone who is—we would love to hear your story. Sharing your healthcare journey can help educate others, offer hope to those who are newly diagnosed, and remind the community that they are not alone.
Click the link in our bio to share your story and help inspire, educate, and empower others.
#PatientWorthy #Myositis #MyositisAwareness #RareDisease #AutoimmuneDisease #RareDiseaseCommunity #PatientAdvocacy #ShareYourStory #CaregiverSupport #StrongerTogether
    Before healing can happen, people need to feel saf Before healing can happen, people need to feel safe enough to tell their story. 
For too many patients, the journey includes not only searching for answers, but searching for someone who will simply believe them. 
Validation doesn't cure disease- but it can quiet self-doubt, restore confidence, and remind someone that their experience matters.
Listening is more than good communication. It's part of good care.
#PatientStories #CompassionateCare #PatientWorthy
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    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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