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    Patient Worthy Memes

    Today, Patient Worthy joins the nation in remember Today, Patient Worthy joins the nation in remembering the lives lost on September 11, 2001, and honoring the courage, sacrifice, and resilience shown in the face of tragedy. We will never forget.
    Progress doesn’t always happen in big, noticeable Progress doesn’t always happen in big, noticeable moments. Sometimes it’s found in simply continuing, learning, adapting, and showing up. Take a moment today to recognize just how far you’ve come.
#InspirationalQuote #MotivationalQuote #Quote #RareDisease #ChronicIllness #PatientWorthy
    A tiny test can carry a lifetime of impact. Expand A tiny test can carry a lifetime of impact. Expanding awareness, access, and education around newborn screening means more families can have answers when they matter most—especially in the rare disease community. #NewbornScreening #NewbornScreeningAwarenessMonth #RareDisease #RareDiseaseAwareness #PatientAdvocacy #PatientWorthy
    No wrong answers. We want to know what matters mos No wrong answers. We want to know what matters most to YOU.
What makes you feel truly cared for by a healthcare provider?
Is it someone who listens without rushing? Shows empathy? Has the knowledge to help? Communicates in a way you understand? Or follows up when the appointment is over?
There is a lot to learn from what patients value most. 🩺💬
#PatientVoice #PatientCenteredCare #PatientWorthy
    Your experience with multiple myeloma deserves to Your experience with multiple myeloma deserves to be heard. 
Patient Worthy is looking for people living with multiple myeloma who are willing to share their stories and help others feel less alone. Whether you’re newly diagnosed, navigating treatment, or have been living with multiple myeloma for years, your perspective can make a meaningful difference.
Interested in sharing your story? Connect with us through the link in our bio to learn more.
#MultipleMyeloma #MultipleMyelomaAwareness #PatientStories #PatientVoice #BloodCancer #PatientAdvocacy #ShareYourStory #PatientWorthy
    If my search history could talk... It would tell t If my search history could talk...
It would tell the story of questions.
The first search for a symptom that didn't feel quite right. The medical term you had to look up three times before you could pronounce it. The test result that led to more questions than answers. The diagnosis you'd never heard of until it suddenly became part of your life.
It would remember the late-night searches, the moments of uncertainty, and the endless scrolling for someone, anyone, with a similar experience.
Because behind every search is something deeply human: curiosity, confusion, fear, learning, and the desire to understand.
Sometimes the journey starts with a question. Sometimes it starts with a hundred.
#PatientWorthy#HealthAwareness #Advocacy #RareDiseaseAwareness
    Awareness starts with understanding. Multiple myel Awareness starts with understanding.
Multiple myeloma can be complex, and learning more about the condition is an important step toward greater recognition, education, and support for those impacted.
Swipe through for a quick overview, and help us spread awareness by sharing this post with your community. If you're interested in sharing your story with multiple myeloma, click the link in our bio!
#MultipleMyeloma #MultipleMyelomaAwareness #BloodCancerAwareness #CancerEducation #PatientAdvocacy #ShareYourStory #PatientWorthy
    No matter where you are on your healthcare journey No matter where you are on your healthcare journey, your story matters, your voice matters, and your strength deserves to be celebrated. 
✨ If you'd like to learn more, connect with others, or share your journey, visit PatientWorthy.com.
#RareDisease #ChronicIllness #PatientWorthy #Hope #Resilience #HealthcareJourney #RareCommunity #ChronicIllnessWarrior 💜
    They say sometimes you gotta laugh or you'll cry! They say sometimes you gotta laugh or you'll cry! Drop your best medical/patient related jokes in the comments 🤣🤣🤣

#LaughThroughTheTears #DadJokes #PatientWorthy
    Follow along on our website and Patient Worthy soc Follow along on our website and Patient Worthy social channels as we focus on multiple myeloma, sharing information about symptoms, diagnosis, treatment, ongoing research, and the experiences of those living with the condition.
Throughout the week, we’ll share articles, resources, and patient perspectives to help raise awareness and provide a deeper look at life with multiple myeloma.
Whether you’re living with multiple myeloma, supporting a loved one, or looking to learn more, we invite you to follow along, explore our latest stories, and help us continue bringing greater awareness to the multiple myeloma community. If you'd like to share your story, click the link in our bio!
#FocusOfTheWeek #MultipleMyeloma #MultipleMyelomaAwareness #PatientWorthy #PatientStories #CancerAwareness
    Effective HAE management is about finding what wor Effective HAE management is about finding what works for you. From treatment plans to ongoing support, every step taken toward managing your condition can help create a stronger foundation for daily life.
Whether you're navigating HAE yourself, caring for a loved one, or looking to learn more about the condition, knowledge and community can make a meaningful difference. If you'd like to learn more about HAE or share your unique healthcare journey, visit PatientWorthy.com and help inspire others through the power of lived experience.
#HAE #HereditaryAngioedema #RareDiseaseAdvocacy #ShareYourStory #PatientWorthy #RareDiseaseCommunity
    Keep believing in what's ahead. 💛 #RareDiseaseComm Keep believing in what's ahead. 💛
#RareDiseaseCommunity #ChronicIllnessWarrior #HopeInEverySeason #PatientWorthy
    September is Blood Cancer Awareness Month! Cancer September is Blood Cancer Awareness Month!

Cancer treatment is about more than remission. David's story is a powerful reminder that while defeating cancer is a remarkable victory, the journey doesn't end there. At just 22, he survived T-cell ALL/LBL, but now faces the lasting impact of osteonecrosis, a serious complication that can cause chronic pain, loss of mobility, and the need for joint replacements.

As we celebrate advances in cancer care, we must also focus on what comes next: protecting quality of life, listening to patients, recognizing complications early, and caring for the whole person, not just the diagnosis. True healing means not only surviving cancer but having the opportunity to fully live afterward.

Read the full article at PatientWorthy.com!

 #PatientAdvocacy #Survivorship #PatientWorthy
    Some days, to "keep moving" looks like progress. O Some days, to "keep moving" looks like progress. Other days, it simply means putting one foot in front of the other. Living with a rare disease can challenge our balance in ways others may never see. But together we keep moving- even through setbacks, uncertainty, and milestones.

Here's to every step forward, no matter how small 💗

#RareDisease #PatientWorthy #ShareYourStory
    ❤️ This Blood Cancer Awareness Month, let's raise ❤️ This Blood Cancer Awareness Month, let's raise our voices for those affected by leukemia, lymphoma, multiple myeloma, and other blood cancers.
Awareness leads to understanding. Understanding leads to action. And action leads to hope.
Together, we can make an impact. 🩸
#BloodCancerAwareness #PatientWorthy #InspireHope #PatientCommunity #BloodCancerMonth
    September is Childhood Cancer Awareness Month. Thi September is Childhood Cancer Awareness Month.
This month, we honor the children facing cancer, remember those we’ve lost, and stand alongside the families, caregivers, survivors, and advocates whose lives have been forever changed by a childhood cancer diagnosis.
Every child deserves a future filled with more than treatments and hospital visits. This month and always, we raise awareness, share stories, and support the continued push for better treatments and brighter tomorrows.
#ChildhoodCancerAwarenessMonth #ChildhoodCancerAwareness #GoGold #PediatricCancer #CancerAwareness #PatientWorthy
    When swelling keeps coming back, finding the reaso When swelling keeps coming back, finding the reason matters.
Hereditary angioedema can be difficult to recognize because its symptoms can resemble other conditions, and attacks may look different from one person to another. That’s why understanding the signs and knowing when HAE testing may be appropriate can make an important difference.
Diagnosis involves specific blood tests that look at C4 and C1 esterase inhibitor levels and function, helping healthcare professionals determine whether HAE may be present and which type may be involved.

If you or your loved one would like to share their HAE story, click on the link in our bio!
#HereditaryAngioedema #HAE #HAEAwareness #PatientWorthy
    Understanding the symptoms and causes of Hereditar Understanding the symptoms and causes of Hereditary Angioedema (HAE) can help patients and families feel more informed, prepared, and empowered. While every HAE journey is different, knowledge can be a powerful tool for navigating challenges and advocating for the care you deserve. Click the link in our bio to share your story with us today!
#HAE #HereditaryAngioedema #RareDisease #PatientWorthy #ShareYourStory
    Not every condition progresses quickly or causes o Not every condition progresses quickly or causes obvious symptoms right away. For some patients, changes can happen gradually over months or even years, making them easier to overlook or harder to connect. This can add another layer of complexity to diagnosis, monitoring, and understanding how a condition may change over time.
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    Sometimes, the most ordinary things become quiet w Sometimes, the most ordinary things become quiet witnesses to the biggest parts of our story.
A pill organizer might look like seven small compartments, but for someone living with a chronic or rare disease, it can represent years of medication changes, new routines, trial and error, small victories, and difficult days.
There are the medications that became part of everyday life, the ones that didn’t work, the doses that changed, and the moments when taking another pill became so routine that you barely thought about it.
Because sometimes, the objects we use every day carry pieces of our story that no one else can see. 🤍 #MedicationJourney #ChronicIllnessAwareness #PatientPerspective #PatientWorthy
    Patient Worthy is looking for people living with h Patient Worthy is looking for people living with hereditary angioedema (HAE) to share their experiences. 
Your story can help others feel seen, raise awareness, and bring greater understanding to what it’s really like to live with HAE.
Interested in sharing your story? Click the link in our bio to connect with us!
#HereditaryAngioedema #HAE #RareDisease #PatientStories #RareDiseaseAwareness #ShareYourStory #PatientWorthy
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    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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