Patient Worthy Memes

Sometimes I feel so frustrated at how much I’ve

Sometimes I feel so frustrated at how much I’ve pushed through, and also don’t want to explain to everyone. Remember that even if they don’t know how strong you are, you do! 💛

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

It’s all about staying compassionate towards you

It’s all about staying compassionate towards yourself💛

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#autoimmunewarrior #autoimmunedisorders
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

Sometimes I feel weirdly ashamed about the medicin

Sometimes I feel weirdly ashamed about the medicines I take, and I have to remind myself that it’s okay, and it’s not a weakness, it just keeps me strong. No shame in medicine, but also no pressure to let everyone in on your health routine either 💛

Thank you @oh_chronicpain for the reminder 😌

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth

I know my friends and family only have good intent

I know my friends and family only have good intentions, and I appreciate their care so much!! Just sometimes, trying to check in can feel like a lecture or getting drilled. I usually just want to rant about my symptoms and medical visits 😬
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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

It’s real, it’s annoying, believe me I would j

It’s real, it’s annoying, believe me I would just get over it if I could! 🥲

Thanks @twobeinghealthy for the relatable content!

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

It was a big lesson for me when I learned that ask

It was a big lesson for me when I learned that asking for help and depending on others is strong. It was growth when I began to express my needs open and ask something of people, and how to give back too.

Thank you @the.chronic.couple for reminding us of the lessons of limitations😌

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#autoimmunewarrior #autoimmunedisorders
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

I’m trying to be positive, but I’m also exhaus

I’m trying to be positive, but I’m also exhausted and hurting and stressing over my health. So excuse my pessimism, it can also be a symptom 🤕🤒

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#chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

#WODC is returning IN-PERSON this August 25-27 at

#WODC is returning IN-PERSON this August 25-27 at the Gaylord National Resort & Convention Center. Join 1,200+ rare disease professionals and hear from 150+ speakers from companies such as FDA, Pfizer, Sanofi and more. Save 20% on your pass when you use code MPN20 at checkout. Register here - https://rb.gy/80auxo

This was a really important distinction for me to

This was a really important distinction for me to learn. I’m not tired, it won’t go away with a good nights rest. I’m perpetually slowed down by my exhaustion. I wouldn’t mind a good night sleep either though 😴🥺💙

Thanks @spoonie_village for this reminder 😴

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #epilepsy

Receiving a diagnosis can be a relief— but also

Receiving a diagnosis can be a relief— but also frustrating. You can finally validate all the things you tried to explain and nobody understood, all the times you wished you were heard. You may finally feel understood, but you can see all the times you weren’t. We hear you

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#chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

@chronicallymeh gets it— a headache +++++ 🤕

@chronicallymeh gets it— a headache +++++ 🤕

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#migraine •#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

For me, my health isn’t just a side note. It eff

For me, my health isn’t just a side note. It effects every dimension of life, so many it can feel like a burden to fully explain. I don’t have the privilege of forgetting about my health, I have to see it all over my day to day. I’ve learned the greatest help is listening 👂😌💛🙏

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

Accommodating disabilities means creating a space

Accommodating disabilities means creating a space that doesn’t need you to announce your handicap, that already is ready for it. It’s a social problem 🙏

Thank you @pacingpixie for the reminder💛

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #disabilityawareness

Happy fourth! 🥳😎❤️💙you don’t need t

Happy fourth! 🥳😎❤️💙you don’t need to socialize to celebrate!! ☺️

Thank you @rachdeline for the post!

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

I have been through a really different experience

I have been through a really different experience as your relative with my disease. All of us struggle with some symptoms more than others. We’re as unique as our illnesses. So it’s when instead of assuming, people listen, it means so much 🙏😋

Thanks @rana2.0 for this graphic 😌

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

It’s hard when we have to find a different balan

It’s hard when we have to find a different balance of life and recovery. We can’t compare our routine, only listen to what we need. Appreciate that balance makes it all better 😌🙏

Thank you @how.u.feeling for this post as always 🥺

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis

This week on our podcast, we sit down with Cher Bo

This week on our podcast, we sit down with Cher Bork and Roberta Smith of the Alagille Syndrome Alliance. We discuss how to support people with this rare condition and preview some upcoming events. Listen to the link in the linktree in bio 👆👆

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#asa #alagillesyndrome #alagille #alagillewarrior #raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth
#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis #eds

Or cancel an hour before and rewatch the office 😇

Thanks @lymewarriorus for sharing this 🤩

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#lyme #lymedisease #lymphedemaawarenessmonth #myelofibrosis #bacterialmeningitis •#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing #mentalhealth

Equality means inclusion, without barriers or exce

Equality means inclusion, without barriers or exceptions. Our rare world knows the struggle of breaking barriers and needing to work to have our needs met. #Happypride to our rare friends and the whole #lgbtq community ❤️🧡💛💚💙💜

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•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing # mentalhealth

Our lonely moments, we know so well. But we are he

Our lonely moments, we know so well. But we are here, we understand, we know what you’re going through and why you’re so brave 💛😌

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#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing # mentalhealth

Migraines are not friends, so neither are my trigg

Migraines are not friends, so neither are my triggers 😭

Thank you @migrainestrong for the tips 💛

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#migraine #migraineawareness #migraineawarenessmonth #migrainerelief
•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #cf #parkinsons #fibromyalgia #healing # mentalhealth #headache #headaches #headacherelief

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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