Kathryn Devanny, Director of Advocacy Relations. Listening to patients and incorporating their needs and perspectives, as to what really matters in health care is Kathryn’s primary goal. She encourages efforts to empower patients and those hoping to make new treatments, and supportive services available to them. She has worked in primary care planning, community health education, hospital administration and occupational medicine prior to concentrating in rare disease research and advocacy. She holds graduate degrees in Anthropology and Public Health Planning and Administration.