• Новости о редких заболеваниях
  • [email protected]
Facebook Instagram Linkedin Pinterest Twitter
  • Home Russian
  • Библиотека
  • болезни
  • Вопросы и ответы
  • Мемы
  • Насчет нас
  • партнеры
  • Пациент Достойный Письменные Подсказки
  • писатели
  • Поделитесь своей историей
  • Поделитесь своей историей
  • Познакомьтесь с нашей командой
  • Правила подачи контента, достойного пациента
  • Связаться с нами
  • Совместный контент на Patient Worthy
  • Меню
  • Home Russian
  • Библиотека
  • болезни
  • Вопросы и ответы
  • Мемы
  • Насчет нас
  • партнеры
  • Пациент Достойный Письменные Подсказки
  • писатели
  • Поделитесь своей историей
  • Поделитесь своей историей
  • Познакомьтесь с нашей командой
  • Правила подачи контента, достойного пациента
  • Связаться с нами
  • Совместный контент на Patient Worthy
    • Join PW

    Мемы

    1. Главная>
    2. Мемы

    Patient Worthy Memes

    Folic Acid Awareness Week is here! This essential Folic Acid Awareness Week is here! This essential B vitamin is vital for healthy pregnancies, but it benefits everyone - helping your cells, heart, and brain. Add more folic acid-rich foods to your plate and take charge of your health! #FolicAcidAwarenessWeek #FolicAcid #PatientWorthy
    Breaking Ground: Palvella Therapeutics Completes E Breaking Ground: Palvella Therapeutics Completes Enrollment in Phase 2 TOIVA Trial for QTORIN™ Rapamycin in Cutaneous Venous Malformations.  Read now at PatientWorthy.com
#PatientWorthy #ClinicalTrial #CutaneousVenousMalformations
    Your voice matters. We are looking for patients wh Your voice matters. We are looking for patients who are open to sharing their healthcare experiences with gastric cancer. Whether you've faced challenges, found strength in your journey, or want to shine a light on what it's really like living with gastric cancer. Your story can make a difference! If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information. To share your story, click the link in our bio.
#GastricCancer #StoryShare #PatientVoices #PatientWorthy
    Every patient deserves to feel safe. On World Pati Every patient deserves to feel safe. On World Patient Safety Day, we stand together to protect lives, build trust, and create a culture of safety in every corner of healthcare. 
#WorldPatientSafetyDay #PatientSafety #TogetherForSafety #PatientWorthy
    Meet Nicole, Senior Advocacy and Recruitment Speci Meet Nicole, Senior Advocacy and Recruitment Specialist at Patient Worthy!
Nicole was a social worker for over 10 years, helping children and families navigate the foster care and adoption system. It was during that time she fell in love with gathering stories and histories and documenting them for posterity. Her passion for connecting with others eventually lead her to patient advocacy. That continued commitment to authentic stories is what drives her work here at Patient Worthy, always striving to empower patients. Everyone’s journey is important, impactful, and should be shared!
    September is Spinal Cord Injury Awareness Month! E September is Spinal Cord Injury Awareness Month! Every voice and action counts in building a more accessible world. #SpinalCordInjury #SCIAwareness #SCI #PatientWorthy
    Metachromatic Leukodystrophy (MLD) is a devastatin Metachromatic Leukodystrophy (MLD) is a devastating, inherited condition that most people have never heard of but for affected families, it changes everything. Early signs can be subtle, but the disease progresses quickly and impacts every part of life. Raising awareness helps support research, early diagnosis, and hope for future treatments! #MLDAwareness #RareDisease #GeneticDisorders #RareDiseaseOfTheWeek #ShareYourStory #PatientWorthy
    ⁉️ Did you know ⁉️ The mitochondria, often ⁉️ Did you know ⁉️ The mitochondria, often called the "powerhouses" of our cells, are essential to keeping us alive. Mitochondrial Disease is a group of genetic disorders that result when the mitochondria are not functioning properly, impacting any organ in the body.

While there is currently no cure, ongoing research offers hope for faster diagnoses and better treatment options. During this World Mitochondrial Disease Awareness week, wear green to support patients and their loved ones!

Click the link in our bio to share your rare disease journey with us!

#MitochondrialDisease #MitochondrialDiseaseAwarenessWeek #PatientWorthy
    Diagnosis and management of sleep disorders in Pra Diagnosis and management of sleep disorders in Prader-Willi syndrome. Read now at PatientWorthy.com
#PatientWorthy #PraderWilliSyndrome #Narcolepsy #TRENDCommunity #SleepingDisorders
    Advanced Head and Neck Squamous Cell Carcinoma Pat Advanced Head and Neck Squamous Cell Carcinoma Patients Double Survival Time. Read now at PatientWorthy.com
#PatientWorthy #HeadandNeckCancer
    Gastric (stomach) cancer often develops slowly and Gastric (stomach) cancer often develops slowly and may go unnoticed in its earliest stages. Knowing the signs can make a difference. Don't ignore ongoing stomach discomfort. If symptoms don't go away, seek medical advice! Early detection can make treatment more effective. To get more information about gastric cancer, check out our website at patientworthy.com
#GastricCancer #KnowTheSigns #EarlyDetection #PatientWorthy #CancerAwareness
    Patient Worthy is pleased to share this story from Patient Worthy is pleased to share this story from our friends at PDSA.org about Cathy and her journey with lupus and ITP. Read at patientworthy.com!
    Tragedy in Pioneering Gene Therapy Trial: Capsida Tragedy in Pioneering Gene Therapy Trial: Capsida Halts Study After First Patient’s Death. Read now at PatientWorthy.com
#PatientWorthy #ClinicalTrials #STXBP1gene
    This week on Patient Worthy's site, we're putting This week on Patient Worthy's site, we're putting a spotlight on Gastric Cancer. We'll be sharing helpful information, explore potential treatment options, and provide an opportunity for patients and caregivers to share their own personal stories. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information. If you have a story to share with gastric cancer, click the link in our bio! #GastricCancer #StomachCancer #ShareYourStory #PatientWorthy
    Happy Neonatal Nurses Week! This week, we celebrat Happy Neonatal Nurses Week! This week, we celebrate the dedication, compassion, and expertise of neonatal nurses who care for our tiniest and most vulnerable patients. Thank you for the difference you make every day in the lives of newborns and their families. #NeonatalNursesWeek #NNW2025 #NeonatalCare #NICUNurse #PatientWorthy
    Rewiring the Menu: How Dietary Tweaks Could Help F Rewiring the Menu: How Dietary Tweaks Could Help Fight Brain Cancer. Read now at PatientWorthy.com
#PatientWorthy #BrainCancer #Gliblastoma
    Suicide Prevention Month is a reminder that none o Suicide Prevention Month is a reminder that none of us know the full weight another person carries. Sometimes a text, a check-in, or a moment of listening can be the lifeline someone needs. 
If you're in pain, please know there's a way through this. And if you see someone hurting, don't wait. 
 
Call or text 988 or access findahelpline.com for resources.
#SuicidePreventionMonth #SuicideAwareness #EndTheStigma #StopSuicide #MentalHealthAwareness
    Patient Worthy is honored to share this story from Patient Worthy is honored to share this story from our friends at GACI Global about Ruben, an infant in the UK who was posthumously diagnosed with GACI. Read at patientworthy.com.
    Hemophilia care has come a long way, but many peop Hemophilia care has come a long way, but many people still don't know what treatment actually involves. This post gives a quick look at the main types of treatment. Understanding the options is key for better support, earlier diagnosis, and stronger advocacy. #HemophiliaAwareness #BleedingDisorders #RareDisease #ShareYourStory #PatientWorthy

If you're interested in sharing your story, click the link in our bio!
    Gene therapies have been effective for many condit Gene therapies have been effective for many conditions, and a new breakthrough brings hope to patients with skin conditions such as Epidermolysis Bullosa. Read more at patientworthy.com!
    Today is World First Aid Day. A reminder that simp Today is World First Aid Day. A reminder that simple skills can save lives! Together we can build safer, stronger communities.
#WorldFirstAidDay #FirstAidSavesLives #RedCross #HealthAwareness #PatientWorthy

This year, let's take action:
- Learn first aid basics
- Share your knowledge with others
- Be prepared to step in when it matters most
    FOLLOW PATIENT WORTHY ON INSTAGRAM

    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

    ¡Trabajemosjuntos!

    Asociarse con nosotros
    Presentarunahistoria
    Seruncolaborador

    Mantener al día

    Suscríbete a nuestroboletín
    Averiguarsobreeventosraros
    Inspírate con nuestros memes

    Aprendemás

    Sobrenosotros
    Enfermedades y condicionesraras
    Términos de uso
    Política de privacidad

    © Copyright Patient Worthy

    Sign Up With a Patient Worthy Account and Share Your Rare Story

    - OR -

    Sign Up For Our Patient Panel

    Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

    More Info

    We're Happy You're Here!

    What best describes you when it comes to rare disease? (check all that apply)

    What rare disease(s)/conditions are most important to you?

    Visit Home Page or

    Thank you for signing up for a Patient Worthy Account!

    Have a rare disease story to share? Let us know

    Share Story

    - OR -

    Sign Up For Our Patient Panel

    Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

    More Info