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    Patient Worthy Memes

    In the rare disease community, no two experiences In the rare disease community, no two experiences ever look exactly the same—even when the diagnosis is shared. Some face severe symptoms early, others experience milder or different challenges over time. Recognizing this range helps create space for empathy, better care, and the understanding that every rare journey is valid, even when it doesn’t look like the textbook version. #RareWordOfTheWeek #RareDisease #RareDiseaseMonth #PatientWorthy
    Connect with stakeholders to create powerful partn Connect with stakeholders to create powerful partnerships, advance orphan therapeutics and inspire advocacy at the Rare Disease Summit, March 17-19 in Philadelphia, PA, US. You’ll generate solution-focused approaches surrounding patient access, reimbursement, commercialization, launch, partnering and more. Save 10%: 26PATWOR10. Register at https://bit.ly/4qrLAbc
    This week on Patient Worthy, we’re shining a spotl This week on Patient Worthy, we’re shining a spotlight on Retinal Vein Occlusion (RVO).
RVO can feel overwhelming, isolating, or unexpected, but your experience matters! That’s why throughout the week, we’ll be sharing meaningful insights, uplifting patient voices, and creating a space where individuals and caregivers can speak openly about their journeys.
Whether you’ve faced sudden vision changes, navigated treatment, or are still searching for answers, your story has the power to guide and encourage someone else walking a similar path.
💜 Want to learn more or join the conversation?
Visit patientworthy.com for the latest updates, resources, and real patient perspectives.
📣 Have a story to share?
Click the link in our bio, we’d be honored to hear your journey.
Your voice could be the light someone else needs today.
#RVO #RetinalVeinOcclusion #EyeHealth #PatientWorthy #ShareYourStory
    💜 Today is International Epilepsy Day 💜 This day i 💜 Today is International Epilepsy Day 💜
This day is for everyone who wakes up and keeps going even when life feels uncertain. Epilepsy brings challenges that are hard to explain yet somehow you continue to show up for yourself and for the people you love. That kind of strength is real and it deserves to be seen.
If you live with epilepsy you are not defined by it. You are shaped by the courage it takes to move through each day and still hold on to hope. You are proof that a complicated journey can still be a beautiful one.
If you have a story to share we would be honored to hear it. Your voice can bring comfort to someone who needs to know they are not walking this road alone.
💜 You matter
💜 Your experience matters
💜 Your light matters
#InternationalEpilepsyDay #EpilepsyAwareness #YouAreNotAlone #PatientWorthy
    Nanoparticles Targeting Tumors Eliminates Most Che Nanoparticles Targeting Tumors Eliminates Most Chemotherapy Side Effects. Read now at PatientWorthy.com
#PatientWorthy #Chemotherapy #SideEffects
    Turning Heart Data Into an Early Warning System fo Turning Heart Data Into an Early Warning System for Vision Loss. Read now at PatientWorthy.com
#PatientWorthy #VisionLoss #EyeDisease
    Meet Andrea! She’s 28 years old and lives with cla Meet Andrea! She’s 28 years old and lives with classical PKU. By participating in Rare Disease Month, she’s able to connect with others and help shine a light on the importance of awareness for PKU and other rare diseases that affect people around the world. We’re truly honored to share Andrea’s story and feature her during Rare Disease Month, helping amplify her voice, raise awareness for PKU, and remind others that no one in the rare disease community is alone! @mypkulife_

#RareDiseaseMonth #RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy #PKU #PKUStrong
    Obesity is more than a number on a scale—it’s a co Obesity is more than a number on a scale—it’s a complex health condition that deserves understanding, proper testing, and personalized care. From accurate diagnosis to effective management and treatment, every step matters. Join us in raising awareness, breaking the stigma, and empowering individuals to access the care and support they deserve. If you have a story to share, click the link in our bio! #Obesity #ShareYourStory #PatientWorthy
    During Rare Disease Month, Patient Worthy is honor During Rare Disease Month, Patient Worthy is honored to share a story from Narah @we.are.rare.2023 who has been diagnosed with Fabry Disease.
“I am Narah, originally from Brazil and living in Florida for the past 17 years. I was diagnosed with Fabry disease after living with symptoms since childhood. For years, my symptoms were misunderstood or overlooked. As my primary doctor once told me, “we are looking for rice and beans...and you are a zebra.” That moment captured the reality of living with a rare disease. When your condition doesn’t fit the usual pattern, it often takes much longer to be seen, heard, and diagnosed. Today, I use my voice to raise awareness about Fabry disease and the importance of recognizing rare diseases earlier because rare should never mean invisible.”
#RareDiseaseMonth #RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy #FabryDisease
    Feeding Tube Awareness Week is about visibility, u Feeding Tube Awareness Week is about visibility, understanding, and respect. Feeding tubes are not a last resort or a failure—they’re a medical tool that provides nourishment, strength, and life. Behind every tube is a person deserving of dignity, patience, and compassion. #FeedingTubeAwarenessWeek #ShareYourStory #PatientWorthy
    Meet Amber! She was diagnosed with Granulomatosis Meet Amber! She was diagnosed with Granulomatosis with Polyangiitis (GPA) in 2017. Through traditional medicine, holistic care, and fierce self-advocacy, Amber is now in remission! She shares her story to educate medical professionals and empower others living with GPA. For Rare Disease Month, her message is clear: we are not alone. Together we share our stories and learn from each other, and knowledge is power! Thanks @HoneyIRoam for sharing your story with us! 

#GranulomatosisWithPolyangitis #Wegeners #RareDiseaseMonth #RareDisease #RareButNotAlone #WeCareAboutRare #ShareYourStripes #ShareYourStory #PatientWorthy
    Obesity affects more than just weight - understand Obesity affects more than just weight - understand the hidden complications and take control of your health today. Your experience can empower others. Click the link below in our bio to share  #HealthEmpowerment #ObesityEffects #PatientWorthy 🏵️ 🏵️ 🏵️
    Let's talk about it: What's the most difficult par Let's talk about it: What's the most difficult part of explaining your rare disease to people who don't understand? Share in the comments! 💙 #RareDiseaseMonth #RareDiseaseAwareness #YouAreNotAlone
    ❤️ Today We Wear Red! ❤️ Feb. 6th is National Wear ❤️ Today We Wear Red! ❤️
Feb. 6th is National Wear Red Day, a powerful reminder that heart disease remains the leading cause of death for women and men. By wearing red, we stand together to raise awareness, spark conversations, and empower our communities to take charge of their heart health.
💪 Know the signs.
💬 Start the conversation.
❤️ Support those impacted.
#WearRedDay #HeartDiseaseAwareness #PatientWorthy
    Roche's Obesity Drug Shows Promise Against Lilly a Roche's Obesity Drug Shows Promise Against Lilly and Novo Nordisk. Read now at PatientWorthy.com
#PatientWorthy #Obesity #GLP-1 #Roche
    Every rare diagnosis has a beginning. One person's Every rare diagnosis has a beginning. One person's journey can spark awareness, lead families toward answers, and help light the path for others who are still searching. Awareness starts somewhere, and often, it starts with one. #RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
    Obesity has many causes—genetic predisposition, ho Obesity has many causes—genetic predisposition, hormonal imbalances, medication side effects, environmental factors, stress, and more. It's not a simple issue with a simple answer. Understanding the complexity is the first step toward real solutions. #Obesity #Symptoms #PatientWorthy 
#ShareYourStory with us at the link in our bio!
    For Rare Disease Month, we're spotlighting Celine For Rare Disease Month, we're spotlighting Celine Dion, who revealed her diagnosis with Stiff Person Syndrome (SPS) in 2022. She did not let her diagnosis stop her, making a triumphant return to the stage at the 2024 Paris Olympics. Through her advocacy, Celine continues to shine a light on the importance of research, understanding, and support for those navigating rare conditions. #RareDiseaseMonth #StiffPersonSyndrome #CelineDion #RareDisease #PatientWorthy
    The European Medicines Agency had endorsed the fir The European Medicines Agency had endorsed the first immunotherapy option for advanced anal cancer. Read more at patientworthy.com!
    Cholangiocarcinoma is rare, but awareness isn't. T Cholangiocarcinoma is rare, but awareness isn't. This February we're raising awareness by making rare cancers more visible. Through education, shared experiences, and open conversations we can encourage understanding, advocacy, and timely care. To share your story with us, click the link in our bio! #Cholangiocarcinoma #RareCancer #PatientWorthy 💚 ✨
    It's National Patient Recognition Week! From Febru It's National Patient Recognition Week!
From February 1–7, we pause to celebrate the heart of healthcare, our patients. Thank you for your trust, your resilience, and the stories you share with us. You inspire us to deliver more compassionate, human‑centered care every day. 
Originally founded in 1995, this week is all about appreciation, advocacy, and strengthening the relationship between healthcare teams and the communities they serve. 
#PatientRecognitionWeek #PatientWorthy
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    Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.

    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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