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    Patient Worthy Memes

    Australian athlete Tiana Death is sharing her stor Australian athlete Tiana Death is sharing her story after being struck with autoimmune encephalitis, a rare condition that has forced her to relearn how to walk and write, among other things. Read more at patientworthy.com!
    The FDA has widened the approved indications for E The FDA has widened the approved indications for Empaveli to now include treating two rare kidney diseases: C3G and (IC-)MPGN. This offers new hope to patients living with conditions such as glomerulopathy and glomerulonephritis. Read more at patientworthy.com!
    This SMA Awareness Month, knowledge is power. SMA This SMA Awareness Month, knowledge is power. SMA is inherited through changes in the SMN1 gene - carrier testing matters! Let’s spread the word and support SMA research together. #SMAAwarenessMonth #SpinalMuscularAtrophy #SMA
#ShareYourStory with us at the link in our bio!
    Are you or a loved one living with Urothelial or B Are you or a loved one living with Urothelial or Bladder Cancer? We're looking to connect with patients or caregivers who are willing to share their journey or learn more about opportunities to make an impact. Message us, click the link in our bio, or visit patientworthy.com to share your story.
#UrothelialCancer #BladderCancer Awareness #ShareYourStory #PatientWorthy #PatientsNeeded
    Bavencio Receives Accelerated FDA Approval for Adv Bavencio Receives Accelerated FDA Approval for Advanced Urothelial Carcinoma. Read now at PatientWorthy.com
#PatientWorthy #UrolthelialCarcinoma #CancerTreatment #FDAApproval
    Menkes disease is a rare genetic disorder that aff Menkes disease is a rare genetic disorder that affects how the body processes copper, leading to serious health challenges early in life. Raising awareness helps drive research and support for affected families. #MenkesDisease #RareDisease #ShareYourStory #PatientWorthy

If you're interested in sharing your story, click the link in our bio!
    A family in Chapel Hill, NC is working to raise aw A family in Chapel Hill, NC is working to raise awareness of Batten disease after their twin daughters were diagnosed with the rare — but serious — condition. Read more at patientworthy.com!
    With some rare diseases, everything can change in With some rare diseases, everything can change in an instant. Symptoms can escalate fast, making awareness and early action essential! #RareWordOfTheWeek #RareDisease #PatientWorthy
    Pharmaceutical company Biogen has achieved a signi Pharmaceutical company Biogen has achieved a significant milestone, with its new treatment Qalsody being approved in the UK for patients living with Motor Neurone Disease, commonly known in the USA as amyotrophic lateral sclerosis, or ALS. Read more at patientworthy.com!
    Did you know that most bladder cancers start in th Did you know that most bladder cancers start in the urothelial cells lining your bladder? Knowing whether a cancer is muscle-invasive or not makes a big difference in treatment and outcomes. Swipe to learn more! 
We'll be sharing information about urothelial cancer all week on patientworthy.com
#BladderCancerAwareness #UrothelialCancer #PatientWorthy 
#ShareYourStory with us at the link in our bio
    Updating the findings from Phase 3 DREAMM 7 trials Updating the findings from Phase 3 DREAMM 7 trials for Relapsed/refractory Multiple Myeloma Patients. Read now at PatientWorthy.com
#PatientWorthy #MultipleMyeloma #CancerTreatment #ClinicalTrials
    Spinal Muscular Atrophy (SMA) is a rare genetic co Spinal Muscular Atrophy (SMA) is a rare genetic condition that affects the motor nerve cells in the spinal cord, leading to progressive muscle weakness. It can appear in infancy, childhood, or adulthood. From babies who struggle to sit, to adults slowly losing mobility- Early diagnosis and new treatments are making a real difference.
#SMAAwareness #CureSMA #SMAAwarenessMonth #PatientWorthy
    Sydney, Australia is currently facing an outbreak Sydney, Australia is currently facing an outbreak of meliodosis, a rare bacterial infection with one fatal case already having occurred. Read more at patientworthy.com!
    Recent studies have shown a strong suggestion that Recent studies have shown a strong suggestion that GLP-1 medications, such as semaglutide, could be a promising treatment option in managing hidradenitis suppurativa (HS), a rare and chronic skin condition. Read more at patientworthy.com!
    August is SMA Awareness Month! Join us in raising August is SMA Awareness Month! Join us in raising awareness for spinal muscular atrophy, supporting those affected, and advocating for continued research and hope. Every voice counts in the fight for a brighter future! #SMAAwarenessMonth #CureSMA #SpinalMuscularAtrophy #SMA #PatientWorthy 
#ShareYourStory with us at the link in our bio!
    This week on Patient Worthy's site, we're putting This week on Patient Worthy's site, we're putting a spotlight on Urothelial Cancer. We'll be sharing helpful information, explore potential treatment options, and provide an opportunity for patients and caregivers to share their own personal stories. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information! #UrothelialCancer #BladderCancer #PatientWorthy #ShareYourStory

If you have a story to share, click the link in our bio!
    Novel Radioactive Medicine used to Treat First US Novel Radioactive Medicine used to Treat First US Breast Cancer Patient. Read now at PatientWorthy.com
#PatientWorthy #BreastCancer #CancerTreatment
    Kevan Chandler, a man born with Spinal Muscular At Kevan Chandler, a man born with Spinal Muscular Atrophy, has written multiple books, appeared on a TED Talk, and more. One of Patient Worthy's own got the chance to meet him after reading his books, and shares her thoughts at patientworthy.com!
    Managing Crohn's disease and Ulcerative Colitis me Managing Crohn's disease and Ulcerative Colitis means staying prepared, especially when it comes to bathroom access. Having the right support and resources can make all the difference! #UlcerativeColitis #CrohnsDisease #RestroomAccess #AllysLaw #IBDAwareness #ChronicIllness

If you have a story you would like to share, click the link in our bio!
    Research trials have shown success in reducing bra Research trials have shown success in reducing brain damage caused by strokes in mice, suggesting a hopeful future for the recovery of stroke patients. Read more at patientworthy.com!
    New Self-Injectable Biologic Brings Hope and Flexi New Self-Injectable Biologic Brings Hope and Flexibility for IBD Patients. Read now at PatientWorthy.com
#PatientWorthy #InflammatoryBowelDisease #IBD #UlcerativeColitis #UC #Crohn'sDisease
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    Nuestroobjetivo escompartirhistorias, cultivar unacomunidad, proporcionanlosúltimosdescubrimientosmédicos, conectar a las personas, y promover la producción de informacióndigna para pacientes.¡Ayúdanosaalcanzarestosobjetivoscompartiendo con nosotros un pocosobreti!

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