According to a story from BioSpace, the biopharmaceutical company Retrophin, Inc., recently released the topline results from its phase 3 clinical trial. This clinical trial was testing the company's drug…
TGIF! Something we believe is that the stories of rare disease patients are vitally important. This week, we're highlighting two articles written by patients, as well as a story about…
Have you ever been judged by others for the things you do or the way you live your life? I know this is a rhetorical question because we have all…
When I was 30, I developed a painful neurological movement disorder called dystonia. It totally turned my life upside down where I went from being fully functional and very active,…
Having lived with chronic pain from dystonia for almost 20 years, I spent most of that time focused on treating the physical symptoms. This has been very important and helpful, but for…
I had the pleasure of attending the Glut1 Deficiency Foundation’s 2019 Conference. While this article can't possibly do the event justice and encompass all it had to offer, we will…
According to a story from ScienceBlog, the results of an international research study which was led by a team of scientists in Oakland, California and Munich, Germany, has led to…
IPain The International Pain Foundation (IPain) is a nonprofit organization dedicated to supporting those with chronic pain due to neurological, musculoskeletal, inflammatory, degenerative, and emotional conditions. They aim to improve…
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