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You searched for: "dystonia"
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How One Musician’s Battle against Dystonia Turned into a Lifelong Pursuit

How One Musician’s Battle against Dystonia Turned into a Lifelong Pursuit

Before I tell a story (that I first read in The Globe and Mail newspaper) about Joaquin Farias and his years-long quest to unlock the mysteries of dystonia, I must…

Continue Reading How One Musician’s Battle against Dystonia Turned into a Lifelong Pursuit
Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment

Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment

A team of researchers at the University College of London (UCL) looking at the genome of childhood-onset dystonia patients has stumbled on a startling discovery: 28 of the patients had…

Continue Reading Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment
China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia

China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia

Bilateral deep brain stimulation (DBS) has been known to help with symptoms of dystonia. But for a form of tardive dyskinesia known as tardive dystonia, DBS hasn't been studied as…

Continue Reading China’s Study on Deep Brain Stimulation Shows Long Term Promise for Tardive Dystonia
For One Dancer, Ballet Takes Center Stage in the Face of Dystonia

For One Dancer, Ballet Takes Center Stage in the Face of Dystonia

When I was in my 20s and 30s, I performed in a lot of musical theater performances— “Music Man,” “Big River,” “Carousel,” “You’re a Good Man, Charlie Brown.” I was…

Continue Reading For One Dancer, Ballet Takes Center Stage in the Face of Dystonia
Researchers Are On the Trail to Find the Cause of Dystonia

Researchers Are On the Trail to Find the Cause of Dystonia

Who would have thought that a classic novel came about because a student accidentally skipped a page in his test booklet for a final exam essay? The person charged with…

Continue Reading Researchers Are On the Trail to Find the Cause of Dystonia
Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!

Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!

A few years ago, a friend of mine who is a violinist suddenly developed a movement disorder called focal dystonia. His neck began to have intermittent muscle contractions. His head would…

Continue Reading Get Ready… The NYC Dystonia Patient Symposium is Coming Up Next Week!
Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

The artist's medium? Wood, mirrors, and various other materials. His art? Jarring and beautiful headpieces—Tiago Valente's way of understanding his own experience with dystonia. Tiago called it facial dystonia, and from…

Continue Reading Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

2017 ST Dystonia Annual Symposium

Continue Reading 2017 ST Dystonia Annual Symposium
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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