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Study of the Week: The Impact of Music Therapy on Pain Perception in Sickle Cell Disease

Study of the Week: The Impact of Music Therapy on Pain Perception in Sickle Cell Disease

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: The Impact of Music Therapy on Pain Perception in Sickle Cell Disease
Finding Purpose Despite Pain: A Sickle Cell Disease Patient Story

Finding Purpose Despite Pain: A Sickle Cell Disease Patient Story

Written By: Teonna Woolford As a child, I never saw myself as anything but “normal.” I loved going to the playground with my friends and jumping rope. My parents encouraged…

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CRISPR Continues to Cut Impressive Numbers in Beta-Thalassemia, Sickle Cell Disease, and More

CRISPR Continues to Cut Impressive Numbers in Beta-Thalassemia, Sickle Cell Disease, and More

A year ago, Paddy Doherty’s doctor told him that he had a rare hereditary disease called transthyretin (ATTR) amyloidosis, the same disease that had killed his father. As reported in…

Continue Reading CRISPR Continues to Cut Impressive Numbers in Beta-Thalassemia, Sickle Cell Disease, and More
ICYMI: The First Patient to Receive CRISPR for Sickle Cell Disease

ICYMI: The First Patient to Receive CRISPR for Sickle Cell Disease

Victoria Gray’s recent interview with NPR confirmed that her genetically modified blood cells have truly transformed her life. Victoria volunteered in the first-ever attempt in the U.S. to use CRISPR,…

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Patient Worthy’s One-Year-Checkup on Victoria Gray, the First Sickle Cell Disease Patient to Receive CRISPR in the US

Patient Worthy’s One-Year-Checkup on Victoria Gray, the First Sickle Cell Disease Patient to Receive CRISPR in the US

   CRISPR is a gene-editing technique that has revolutionized the medical world with its approach to making precise changes in DNA. CRISPR found its match in 35-year-old Victoria Gray of…

Continue Reading Patient Worthy’s One-Year-Checkup on Victoria Gray, the First Sickle Cell Disease Patient to Receive CRISPR in the US
Dr. Love Joined the Fight Against Sickle Cell Disease and Discrimination

Dr. Love Joined the Fight Against Sickle Cell Disease and Discrimination

A recent article in the journal Nature elaborated on the work of Dr. Ted Love who left early retirement in 2013 to devote his talents and experience to the development…

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Managing Sickle Cell Disease Includes Addressing Quality of Life for Patients

Managing Sickle Cell Disease Includes Addressing Quality of Life for Patients

Three doctors recently got together to discuss how they manage care for their sickle cell disease (SCD) patients. As a part of this conversation, they discussed how they combat systemic…

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Sickle Cell Disease: A Call for Awareness

Sickle Cell Disease: A Call for Awareness

According to a story from MSN, Busola Omiyale's daughter Toriayooluwa was only nine months old when she could tell that something wasn't right. The girl had sickle cell disease, a…

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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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