Let’s all breathe a sigh of relief that we live in the age of modern medicine—and by that, I mean 2016.
Less than 100 years ago, diseases like leprosy, now known as Hansen’s disease, were incurable, and much like early AIDS sufferers, victims were isolated, marginalized, and looked down upon.
Nowhere was that more true for Hansen’s patients than in 20th century Japan.
As recently as 1953, laws were passed to prevent the spread of leprosy and to care for those afflicted. What this did was give the government the power to isolate patients in what was called a leprosarium – a hospital for people with leprosy.
Thousands of Japanese people spent more than half a century in such places. Sadly, one woman recalled how in 1996, her mother sent her away, wishing her a swift death and the admonition to never return to her home.
50 years later, she still winces in pain at the memory.
Hansen’s disease has long been considered one of the world’s deadliest diseases. However, today, this chronic bacterial disease that manifests mainly in the skin and peripheral nerves is treatable. Treatments may last several years, but people can continue with their lives as normal—going to work, attending social events, and mingling with the community at large.
What hasn’t gone away, however, is the stigma.
If you would like information or support regarding Hansen’s disease, contact the National Hansen’s Disease Programs toll-free at (800) 642-2477.
