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Daily Archives: September 15, 2016

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This Amazing Doctor Made All the Difference in Treating Leprosy
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This Amazing Doctor Made All the Difference in Treating Leprosy

  • Post author:Erica Zahn
  • Post published:September 15, 2016
  • Post category:Hansen's disease/Rare Disease

On February 7, 2016, an elderly man died in the foothills of the San Gabriel Mountains. Okay, but why is that remarkable? After all, elderly men and women pass away…

Continue Reading This Amazing Doctor Made All the Difference in Treating Leprosy
Helping This Father with MSA Make Fun New Memories

Helping This Father with MSA Make Fun New Memories

  • Post author:Ronald Ledsen
  • Post published:September 15, 2016
  • Post category:Multiple system atrophy (MSA)/Rare Disease

Maybe it’s just me, but it feels like turning on the television, picking up a newspaper, or going online should come with a trigger warning. Everywhere you turn it seems…

Continue Reading Helping This Father with MSA Make Fun New Memories
This is the Secret to a Successful Life with FMF
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This is the Secret to a Successful Life with FMF

  • Post author:Farrah Fontaine
  • Post published:September 15, 2016
  • Post category:Familial Mediterranean Fever/Rare Disease

Most people don't associate the word "fever" with something chronic. They think of it in terms of a flu or passing infection. You've heard the phrase: "Feed a cold. Starve a…

Continue Reading This is the Secret to a Successful Life with FMF
What Do You Know About Myelodysplastic Syndromes Management?
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What Do You Know About Myelodysplastic Syndromes Management?

  • Post author:PW Blogger
  • Post published:September 15, 2016
  • Post category:Myelodysplastic syndromes/Rare Disease

We have all heard the phrase knowledge is power. Everyone, at some point in their lives, has to learn how to do something. From cooking, to driving, to using the…

Continue Reading What Do You Know About Myelodysplastic Syndromes Management?
La nueva mascota crónica? Conozcamos al #SpoonieShark!

La nueva mascota crónica? Conozcamos al #SpoonieShark!

  • Post author:Patient Worthy Contributor
  • Post published:September 15, 2016
  • Post category:Rare Disease

desarrollos recientes de Twitter en la comunidad crónica han implicado el posible descubrimiento de una nueva mascota. Karl Austin (@ Porkchop275) se encontró con una imagen de un tiburón, y…

Continue Reading La nueva mascota crónica? Conozcamos al #SpoonieShark!
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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