Upcoming FREE MDS Forum in AZ!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Phoenix, Arizona. When: Saturday, March 9th, 2019 Where: Sheraton Crescent…
Effect of Government Shutdown on Rare Disease Research
The government shutdown hasn't had any startling affects on rare disease research yet, but drug developers have voiced their concern that it could soon begin to hinder the research process.…
A New Phase II Trial for Myelodysplastic Syndromes and Acute Myeloid Leukemia is Underway!
Myelodysplastic syndromes (MDS) is the name used to describe a group of stem cell disorders in which the body can't produce an adequate amount of platelets and blood cells. Currently,…
<a href="https://pixabay.com/users/Pexels/">Pexels</a> / Pixabay
New Model More Effectively Predicts Outcomes in Myelodysplastic Syndromes
According to a story from Science and Technology Research News, a group of researchers from the Cleveland Clinic led by Dr. Aziz Nazha will soon present a new myelodysplastic syndromes…
<a href="https://pixabay.com/users/PublicDomainPictures/">PublicDomainPictures</a> / Pixabay
Presentations Demonstrate Promising Advances in Blood Cancers and Blood Disorders
According to a story from PR Newswire, presentations at the 60th annual American Society of Hematology Meeting and Exposition are highlighting the results of four large scale clinical trials that…
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The Role of Genetic Testing in Diagnosing Myelodysplastic Syndromes
A recent article titled ‘How I use molecular genetic tests to evaluate patients who have or may have myelodysplastic syndromes’ published in the journal Blood discusses the role of genetic testing for…
<a href="https://pixabay.com/users/PublicDomainPictures/">PublicDomainPictures</a> / Pixabay
Genetic Sequencing After Stem Cell Transplant Can Inform Outcomes in Myelodysplatic Syndromes
According to a story from Hematology Times, a recent study found that genetic sequencing after the completion of a hematopoietic stem cell transplant could provide doctors with vital information about…
<a href="https://pixabay.com/users/luvqs/">luvqs</a> / Pixabay
Multiple Studies Help Define New Biomarkers for Myelodysplastic Syndromes
According to a story from Medpage Today, three recent research studies have managed to reveal new biomarkers for myelodysplastic syndromes. Biomarkers are a crucial factor for understanding a medical condition…
A Study of an Investigational Acute Myeloid Leukaemia and Myelodysplastic Syndrome Drug Has Completed Enrolment
The company Imago Biosciences, which focuses on developing anti-cancer therapies, is carrying out a Phase 1/2a clinical study of an investigational drug called IMG-7289 as a potential treatment for…
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A New Study Identifies a Possible Gene Linked to Myelodysplastic Syndromes
A group of researchers studying the causes underlying myelodysplastic syndromes have found that HIF1A may play an important role in these conditions. For more detailed information, you can read the…
FREE MDS Event in VA Rescheduled for December 15th!
Our partner, the MDS Foundation, is sponsoring another free event for patients with MDS and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver…
Free MDS Event in Ohio!
Our partner, the MDS Foundation, is sponsoring another free event for patients and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this…
Welcome AAMDS, a New Patient Worthy Advocacy Partner!
We're happy to introduce a new partner to Patient Worthy's mission of advocating for rare disease patients! The Aplastic Anemia and MDS International Foundation (AAMDS) supports, connects and educates patients, caregivers…
Free MDS Event in Minnesota this August!
Patient Worthy’s partner the MDS Foundation will be hosting a patient forum on August 11th, 2018 from 9:30am-2:00pm "Whether you are a newly diagnosed patient, a long-term survivor, or a…
July MDS Patient Forum and Awareness Walk!
Patient Worthy's partner The MDS Foundation will be hosting a patient forum and and their first ever awareness walk in July! The 5k will be held July 20th and the…
Don’t Miss this Free MDS Event in New Jersey!
Patient Worthy’s partner, The MDS Foundation, will be hosting another wonderful event for MDS patients and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a…
A Treatment Trial Has Produced Promising Results in Patients With Myelodysplastic Syndromes
A press release from Aprea Theraputics has just announced the results of a Phase II clinical trial of the drug APR-246 in patients with myelodysplastic syndromes (a group of blood…
Don’t Miss this Free MDS Event in Utah!
Patient Worthy’s partner, The MDS Foundation, will be hosting another wonderful event for MDS patients and caregiver. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a…
Upcoming Free MDS Event in Pittsburgh
One of Patient Worthy’s partners, The MDS Foundation, will be hosting another FREE event! Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event…
Upcoming FREE MDS Event in New Mexico!
One of Patient Worthy's partners, The MDS Foundation, will be hosting another FREE event! When: Saturday, March 3rd, 2018 9:30am – 2:00pm Where: Embassy Suites Albuquerque Hotel & Spa 1000…
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Upcoming FREE MDS Event in California!
One of Patient Worthy's partners, The MDS Foundation, will be hosting another FREE event! When: February 3rd, 2018, 9:30am – 2:00pm Where: San Diego Marriott La Jolla Hotel Soledad Ballroom…
Rare Disease Families Face Financial Challenges Few Understand
Rare Disease family members often hear, “I don't know how you do it.” This remark usually refers to the physical and emotional aspects of the condition, but those who make…
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Free MDS Event Coming Up in TX!
Another free event for MDS patients and caregivers is being held by the MDS Foundation! When: Saturday, November 18, 2017, 9:30 am-2:00 pm Presenters: Courtyard by Marriott San Antonio Medical Center…
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Free MDS Event in New York, NEXT WEEK!
Another free event for MDS patients and caregivers is being held by the MDS Foundation! Where: Residence Inn New York the Bronx at Metro Center Atrium Rooms A&B (second floor)…
Source: Pixabay
Make Way for MDS World Awareness Day 2017 Next Week!
Last year in London, a flash mob took the streets and pounded out a choreographed routine to the song "I Am What I Am". They weren't just having a blast…
