After emigrating from his native Sweden, Ronald spent a stint in the Merchant Marines while trying to work out what he wanted to do with his life. He discovered a love of writing while helping a friend write anonymous Harry Potter fan-fiction online; he discovered meaning to his writing when he began journaling after an anxiety disorder diagnosis. Ronald is most relaxed when spending quiet time with his wife, two sons, and hyperactive cat.

    Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment
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    Scientists Find a New Genetic Cause for Dystonia… and a Possible Treatment

    A team of researchers at the University College of London (UCL) looking at the genome of childhood-onset dystonia patients has stumbled on a startling discovery: 28 of the patients had…

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    What We Don’t Talk About Could Hurt Us: Discussing Race, Genetics, and Treatment Decisions
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    What We Don’t Talk About Could Hurt Us: Discussing Race, Genetics, and Treatment Decisions

    The concept of “race” occupies a perilous crossroads at this moment in American history. Some would argue that we live in a “post-racial” world since the election and re-election of…

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    The Double-Whammy of Mental Illness and Tardive Dyskinesia Just Got a Little Easier
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    The Double-Whammy of Mental Illness and Tardive Dyskinesia Just Got a Little Easier

    So I don’t think it will surprise anyone to learn that people living with mental illnesses like schizophrenia or bipolar disorder have to put up with a huge ration of…

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    Landmark Clinical Trial Suggests the Possibility of Eradicating Multiple Myeloma
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    Landmark Clinical Trial Suggests the Possibility of Eradicating Multiple Myeloma

    While multiple myeloma treatment has made significant advances in recent years, the prospect of a cure remains as elusive as ever—just as it does for all cancers. But that may…

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    One Dedicated 70+ Doctor is Trying to Identify Thousands of PID Patients
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    One Dedicated 70+ Doctor is Trying to Identify Thousands of PID Patients

    If you’re lucky enough to find a job that you’re passionate about, it’s easy to see “work” as anything but. Still, love your job or not, it’s important to know…

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    Dab in Memory of Brave Little Boy Who Fought Adrenoleukodystrophy With a Smile
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    Dab in Memory of Brave Little Boy Who Fought Adrenoleukodystrophy With a Smile

    In writing for Patient Worthy, we’re privileged to discover some amazing stories of how people live with—and live through—the adversity of having a rare disease such as adrenoleukodystrophy (ALD). Sadly,…

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    Cystic Fibrosis Community Wins Big as Vertex, Irish Government Agree on Prices
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    Cystic Fibrosis Community Wins Big as Vertex, Irish Government Agree on Prices

    Regular readers of Patient Worthy know the cost of drugs is a huge barrier to treatment for many patients and families. Additionally, the fewer people diagnosed with a condition, the…

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    Think You Can Never Have Too Much Water? Hyponatremia Says “Think Again”
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    Think You Can Never Have Too Much Water? Hyponatremia Says “Think Again”

    I will freely admit: I am terrible, terrible, TERRIBLE about drinking enough water each day. Do I know it’s important? Of course I do! Do I recognize the health benefits?…

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    Statins May Do More Than Lower Cholesterol: They May Give IPF Drugs a Boost
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    Statins May Do More Than Lower Cholesterol: They May Give IPF Drugs a Boost

    For people living with Idiopathic Pulmonary Fibrosis (IPF), every day is part of an ongoing battle to hold on tight to lung function as long as possible. That battle can…

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    Smallest “Patriots Day” Actor Fights a Real Life Villain: CGD
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    Smallest “Patriots Day” Actor Fights a Real Life Villain: CGD

    Hey, do you guys remember that Mark Wahlberg movie that came out not long ago? You know, the one where he’s a cop? No no, not that one. The serious…

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    Here’s How This STAT1 Genetic Library Could Save Lives
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    Here’s How This STAT1 Genetic Library Could Save Lives

    The concept of a “library” is something we probably take for granted—but at its core, the library is one of humanity’s greatest innovations. The act of collecting information for the…

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    These Sewing Heroes Make Life a Little Easier for the Smallest SBS Patients
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    These Sewing Heroes Make Life a Little Easier for the Smallest SBS Patients

    You’ve heard the saying, it takes a village to raise a child? Well, as much as the fiercely independent may chafe at the suggestion, it’s true: raising, teaching, and protecting…

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    It’s a Hunter Syndrome Pediatric Indication Swap-Meet!
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    It’s a Hunter Syndrome Pediatric Indication Swap-Meet!

    Okay, I’m going to be perfectly honest: I don’t quite know what to make of this. On the one hand, you have some excellent news for people living with mucopolysaccharidosis…

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    Exciting News for the Future of Duchenne Muscular Dystrophy
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    Exciting News for the Future of Duchenne Muscular Dystrophy

    Few things are scarier in life than dealing with a sick child. But for some parents, that fear is compounded into a living nightmare when they are told their child…

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