ICYMI: Help this Mother Raise Money for 5-Year-Old Daughter’s Menopause

Puberty, development, and menopause - most parents have found that explaining these concepts to kids, though entirely natural and unavoidable, comes with a certain degree of discomfort. In girls in…

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New Evidence Uncovered Connecting Risk Factors Between Zika Virus and Guillain-Barré syndrome
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New Evidence Uncovered Connecting Risk Factors Between Zika Virus and Guillain-Barré syndrome

New findings are coming from a recent study led by researchers at the Journal of the American Medical Association (JAMA) that could have long-term implications for Zika Virus research. Evidence showed that…

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FDA Fast Tracks First Possible Treatment for Familial Adenomatous Polyposis

In late September, Food and Drug Administration designated "fast track" status to the research and development of CPP-1X/sul for adults diagnosed with Familial Adenomatous Polyposis (FAP). Overseeing the project are Cancer…

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Karolinska Institutet’s Cell Model of the Brain Provides Vital New Knowledge of Lissencephaly
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Karolinska Institutet’s Cell Model of the Brain Provides Vital New Knowledge of Lissencephaly

Recent research led by Swedish neuroscience docent Anna Falk at the Karolinska Institutet has uncovered new insight into the behavior of the cells of Lissencephaly patients. By reprogramming skin cells…

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Do You Know Enough About Cystic Fibrosis and “Old People’s Tests”?
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Do You Know Enough About Cystic Fibrosis and “Old People’s Tests”?

As a registered nurse, I have taken care of a fair share of the senior population. I have heard some great stories and also some funny quotes. Several older individuals…

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Heartwarming Video Alert: Dad with Stargardt Disease Sees His Family for the First Time
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Heartwarming Video Alert: Dad with Stargardt Disease Sees His Family for the First Time

Being married to the love of your life would mean that you know everything there is to know about one another. Physically, emotionally, and mentally. Right? Well, Gene is married…

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Here’s How This Young Man with Stargardt Disease is Beating the Odds
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Here’s How This Young Man with Stargardt Disease is Beating the Odds

I love to read a good story about someone overcoming the odds. A young man living with Stargardt disease has done just that this month! He is the first Indian to…

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Does Palliative Care Have a Role in Living with Rare Disease?
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Does Palliative Care Have a Role in Living with Rare Disease?

What comes to mind when you hear "palliative care?" Most people might think it only helps someone with end-of-life care. But did you know that palliative care can actually lift spirits…

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This Man is Proof: You Can Live with Cystic Fibrosis in the Golden Years
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This Man is Proof: You Can Live with Cystic Fibrosis in the Golden Years

Most people think of children when they hear cystic fibrosis. Thankfully with new treatments and new therapies people are living much longer. This gentleman, named Gary Anderson, is a perfect example.…

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