Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease and Medication
May is Huntington’s Disease Awareness Month: #LetsTalkAboutHD
The month of May is Huntington’s Disease Awareness Month, in which a special effort is made to improve awareness about this devastating rare disease. This
Mississippi Has Established a Rare Disease Advisory Council (RDAC)
In the United States, a rare condition is defined as one affecting fewer than 200,000 people nationwide. But when you consider how many people actually
EU Researchers Begin Working on an ALS Treatment and Vaccine
An American triathlete, Jon Blais, received a diagnosis of amyotrophic lateral sclerosis (ALS) in 2005 when he was 33 years old. The disease is incurable.
RECAP: My Time at the PBCers 2024 Patient Education Conference: “Empowering Connections in PBC”
What’s better than being in warm and sunny Arizona? Getting to learn alongside the amazing primary biliary cholangitis (PBC) community while there! The PBCers organization
Health Canada Accepts Priority Review of New Drug Submission for Exa-cel for Sickle Cell Disease and Beta Thalassemia
Exa-cel Gene-Edited Therapy Vertex Pharmaceutical recently announced that Health Canada has accepted its New Drug Submission and granted Priority Review for Exa-cel, a gene-edited cell
TMDU Researchers Develop Mouse Model for Anti-MDA5 Antibody-Positive Dermatomyositis
Developing an animal model of a disease can play an important role in both helping researchers to better understand that disease, as well as identifying