Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease and Medication

Sanofi’s Gene Therapy for Wet AMD Earns FDA Fast Track Designation
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to SAR402663, Sanofi’s investigational gene therapy for neovascular age-related macular degeneration (AMD). As

Brewing Good Health: New Research Reveals Coffee’s Powerful Gut Benefits
Coffee lovers have long celebrated their favorite beverage for its taste and energy boost, but recent research offers another compelling reason to savor that daily

Rady’s Lupus Journey: Carried by Faith, Fueled by Hope
I came to the United States from the Philippines in June 2016, full of excitement and dreams. I was ready to build a new life,

Experimental Gene Therapy Slows Huntington’s Disease Progression in Landmark Trial
An experimental gene therapy known as AMT-130 has become the first treatment to successfully slow the progression of Huntington’s disease, marking a potential breakthrough in

FDA Signals Flexibility as Lexeo’s Gene Therapy for Rare Disease Advances Toward Faster Approval
Lexeo Therapeutics announced a significant regulatory development this week: the U.S. Food and Drug Administration (FDA) is open to a faster approval pathway for the

Sherry Crutchfield’s Journey with Glanzmann Thrombasthenia
Editor’s Note: Patient Worthy is proud to share this story from our friends at the Glanzmann’s Research Foundation (GRF). To see the article in its