Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease
Pierre Robin Sequence: EU Family Seeks Appeal After Denial of Treatment Coverage
Philippe Pakter’s daughter Lysiane was born on March 29th 2017 in Lyon, France. However, soon after her birth, Philippe and his partner Delphine were hit
Editor’s Choice: So How Close Are We to Artificial Nerve Cells?
Happy Thursday, Patient Worthy Friends! This week we’re highlighting two stories on families who went on a diagnostic odyssey to understand their children’s rare diseases.
Generic Drugs from India Have Safety Issues. The FDA Can’t be Bothered
According to a story from The People’s Pharmacy, the US Food and Drug Administration (FDA) has given the green light for the use of generic
The Results From This Immune Thrombocytopenia Trial are Good News for Patients
According to a story from ucb.com, the biopharmaceutical company UCB has recently released the final results from its phase 2 clinical trial which tested the
When Cone Dystrophy Took His Eyesight, This Painter’s Art Evolved
By Jack Gerard from In The Cloud Copy Travis Allen, of Lisbon, Iowa, was a painter who specialized in photorealistic works. Unfortunately, a rare
NORD’s Rare Disease Database Provides Crucial Information on Rare Diseases
According to a story from the Washington Post, rare diseases are a much more widely spread problem than you might think. There are at least
