Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease
Online Gaming Allowed Duchenne Muscular Dystrophy Patient to Transcend Physical Limits
According to a story from BBC, Mats Steen passed away at 25 years old due to complications from his Duchenne muscular dystrophy. Upon his death,
Upcoming FREE MDS Event in Florida!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Jacksonville, Florida When: Saturday, March 30th,
Upcoming FREE MDS Forum in AZ!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Phoenix, Arizona. When: Saturday, March
8-Year-Old Flown to US for Surgery Dies After Rare Reaction to Anesthesia
The Washington Post reported in December of last year that the 8-year-old Matadi Sela Petit had died during surgery in a Los Angeles hospital. The
Experimental Cancer Drug Displays Potential in a Number of Rare Cancers
According to a story from EurekAlert!, a new type of cancer drug that is being described as a “Trojan horse” that infiltrates cancer tumors is
New Potential Treatment for Cryptococcosis Granted Orphan Drug Designation
Cryptococcosis Cryptococcosis is a disease caused by the Cryptococcus fungus. It can affect the lungs, the spinal cord, or the brain. When the brain is
