Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease
New Patient Portal to Allow For Greater Transparency of Trial Results
According to a story from outsourcing-pharma.com, the company Iqvia has just launched its all-new patient portal. However, while many patient portals are intended to allow
Primary Immunodeficiency in Children: Early Intervention is Important
According to a story from The Indian Express, early treatment and diagnosis of primary immunodeficiencies makes management of this group of disease much simpler as
-300x300.jpg)
Improved Guidelines for Patient Advocacy Groups Supporting Rare Diseases and Working with Pharmaceutical Companies
A study appeared recently in the Orphanet Journal of Rare Diseases reporting that rare diseases affect 350 million people worldwide. The definition of rare disease
Oklahoma Passes Incremental “Step Therapy” Bill
According to a story from kfor.com, Governor Kevin Stitt of Oklahoma recently held a signing ceremony for a bill that is being hailed as a
Editor’s Choice: Studies, Policies, and Grants
Happy Thursday! This week, we’re highlighting an article about the neglect of policies meant to protect people with IBD. Next, we have stories on two
Free MDS Forum in TN!
Our partner organization, The MDS Foundation, Inc., is sponsoring another free myelodysplastic syndromes (MDS) Patient & Family/Caregiver Forum in Nashville, Tennessee. When: Thurs., September 19,
