Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With Personalize My Medicine
Patient Worthy Posts on Rare Disease and Medication
Global Innovation in Patient Advocacy: Navigating Clinical Trials for Rare Disease
On March 9-10, 2023, Dynamic Global Events hosted the virtual Global Innovation in Patient Advocacy conference. This event was geared towards various stakeholders in the
FDA Approves Daybue (Trofinetide) for Rett Syndrome
An estimated 6,000-10,000 people within the United States are living with Rett syndrome. Prior to this month, these individuals have not had access to
LIVMARLI Now Approved for Children with Alagille Syndrome as Young as 3 Months Old
In many rare conditions, early diagnosis and treatment typically correspond with better outcomes. Prior to March 2023, LIVMARLI (maralixibat) was approved for the treatment of
MLB Players Bartend to Raise Funds for Amyloidosis Support Groups
On March 9, 2023, Issues Concerning Athletes held its 13th Annual Celebrity Bartender Night at Wasted Grain in Scottsdale, AZ. Erica Brooks, the Founder of
Rare Community Profiles: How the #RAREis Global Advocate Grant Supported the E. WE Foundation: A Discussion with Sarita Edwards
Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease
An Uptick in Babesiosis Cases in the Northeast Has Some People Concerned
In many cases, babesiosis – a rare parasitic illness – is not fatal. Some individuals who are infected with babesiosis are even asymptomatic, meaning
