For years, beginning during the onset of puberty, I experienced unexplained nausea and abdominal pain, bladder, kidney, and heart problems. I received several misdiagnoses—no one could explain the cause of my symptoms and I became terribly depressed. When I finally found a doctor who tested me for porphyria, I received a name for my rare disease: acute hepatic porphyria (AHP). Life with AHP is not easy, but I’m committed to helping others navigate their diagnoses because I know how valuable good support can be. I am an AHP patient ambassador for Alnylam Pharmaceuticals.
My name is Megan and I live with acute hepatic porphyria (AHP). My health journey began with the arrival of puberty. I started to experience terrible nausea and abdominal pain…
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