After 16 years with Metro Commercial Real Estate, I was diagnosed with Stiff Person Syndrome (SPS) which is a very rare, progressive neurological syndrome with an autoimmune component. Being that it is such a rare syndrome (roughly 1 to 2 in a million people diagnosed worldwide), very few doctors are even aware of its existence and are unable to diagnose it. There is no known cause or cure for SPS, but there are medications and treatments that help mitigate the symptoms. My goal is to create more awareness regarding this syndrome and to raise funds for my neurologist’s continuous research. Let’s find a cure!
Have you ever awoken in bed and thought that what happened the day before must have been a nightmare? It CANNOT possibly be true that I have a rare disease…
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Cursed, But Prepared: A Diagnosis of Stiff Person Syndrome (SPS) And The Importance of Private Disability Insurance