Rebekah Palmer is the author of two books published by Aneko Press: A Letter to my Friend and A Letter to Myself. She also has poetry included in the anthology Strength: Lives Touched By Cystinosis. She is a rare disease news curator for her blog Cystinosis Society. Please visit her author profile on Goodreads and her author page on Facebook called Jairus Daughter to ask any questions or to reach out.
Por Rebekah Palmer La comunidad de enfermedades raras tiene un problema demasiado común de no usar un lenguaje preciso cuando se trata de dirigirse a las personas y las…
Para aquellos con un diagnóstico médico complicado, el seguro de salud financiado por el estado es poco práctico. Los pacientes que viven con enfermedades raras y crónicas deben programar visitas…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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