Esta maravillosa historia fue llevada a Patient Worthy por nuestros socios, la Cystinosis Research Network (CRN). La temporada de dar comenzó en un entorno poco convencional para la familia Moore.…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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