Un estudio publicado en el Orphanet Journal of Rare Diseases supervisó la progresión a largo plazo de 16 pacientes que tenían la enfermedad de Niemann-Pick tipo B. El estudio sirvió…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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