Lo que comenzó como una sed peculiar e insaciable de agua condujo a un diagnóstico de enfermedades raras para una familia de Denver. Aunque no esperaban este desafío, están listos…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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