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Events for July 16, 2018

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The Barth Syndrome Foundation’s Scientific, Medical, and Family Conference

July 16, 2018 - July 21, 2018
Hilton Clearwater Beach Hotel, 400 MANDALAY AVENUE
Clearwater, FL United States
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THE 9TH INTERNATIONAL SCIENTIFIC, MEDICAL & FAMILY CONFERENCE "Power Up!" This event will be a convergence of health providers, researchers, and industry leadership to present the latest research and treatments in the field of Barth syndrome to the patient community. The event will also be an opportunity for Barth syndrome patients and their relatives to […]

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Ongoing

The International 22q11.2 Foundation’s Biennial International 22q11.2 Conference

July 14, 2018 @ 8:00 am - July 16, 2018 @ 6:00 pm
The Westin Whistler, 4090 Whistler Way
Whistler, British Columbia Canada
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$250

The 11th Biennial International 22q11.2 Conference This event is open to families affected by DiGeorge syndrome (22q11.2) and other deletion duplication syndromes. Participants will learn the latest information about these conditions from leading experts in the research field. Families will also have the opportunity to network and share with one another, as well as just […]

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