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September 2015
HAE-Day
The annual HAE Awareness Day aims to raise awareness of HAE – a potentially life threatening disease – across the world, to ensure each and every patient receives faster diagnosis and the care they deserve to enable them to lead a healthy life. The HAE Awareness Day takes place on 16 May every year.
Find out more »October 2015
HAEA National Patient Summit
The US HAEA is excited to announce its 2015 US HAEA National Patient Summit will be held in Denver, CO on October 9-11! Meet new and old HAE friends at a fun and supportive gathering of patients and families. Learn about the latest in angioedema research and treatments Have your HAE questions answered by expert HAE physicians/scientists. Speak to insurance and reimbursement specialists Participate in research that will be published in medical journals This meeting is filled with opportunities provided…
Find out more »May 2018
HAEi’s HAE Global Conference
The 2018 HAE Global Conference "Take control of your HAE" #haeGC18 The event will be an opportunity for caregivers, researchers, scientists, and the international hereditary angiodema patient community to converge to learn about the latest in research and treatments for the disease. In addition, patients will find an open and accepting environment to interact with other members of the hereditary angiodema community and understand how to cope with the disease and live a healthy and happy lifestyle. Registration single room: €250/person…
Find out more »December 2019
HAE Webinar Wednesdays: Managing HAE in Your Family Patient Advocate Speaker Program
Speaker: Shari Sharr, Living with HAE & Doug Johnston Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
Find out more »January 2020
HAE Webinar Wednesdays: A Subcutaneous Therapy Option for HAE Patient Advocate Speaker Program
Speaker: Machelle Pecoraro, Living with HAE & Marc Riedl Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
Find out more »February 2020
HAE Webinar Wednesdays: Women & HAE Patient Advocate Speaker Program
Speakers: Zahra Khan, Living with HAE & Autumn Burnette Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
Find out more »April 2020
HAE Webinar Wednesdays: Managing HAE in Your Family HAE Patient Advocate Speaker Program
Speakers: Cheryl French, Living with HAE & John Anderson Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
Find out more »May 2020
HAE Webinar Wednesdays: A Subcutaneous Therapy Option for HAE Patient Advocate Speaker Program
Speakers: Jason Meyer, Living with HAE & Raffi Tachdijan Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
Find out more »June 2020
HAE Webinar Wednesdays: Women & HAE Patient Advocate Speaker Program
Speakers: Leah Weisbecker, Living with HAE & Marc Riedl Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity to ask questions to both speakers in real time! To register for this webinar, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare…
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