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June 2018
Penn Center for Musculoskeletal Disorders’ Advances in Rare Musculoskeletal Disorders Symposium
Advances in Rare Musculoskeletal Disorders Symposium This event will feature keynote addresses from internationally renowned musculoskeletal disorder experts, who will address subjects such as Marfan syndrome. The event will include five talks from experts and three moderated scientific sessions that will feature in-depth discussion. Registration for this event is free.
Find out more »July 2018
The Marfan Foundation’s Annual Conference
This conference is available to children and adults affected by Marfan syndrome and their families. It will serve as an opportunity to meet other members of the Marfan syndrome patient community and learn more from experts about the latest information about this syndrome. Participants will also learn about best practices for managing the condition and will have the opportunity to connect with other families and share their stories. Registration Early registration (Before 6/1): $375 Late registration (After 6/1): $425…
Find out more »June 2024
The Marfan Foundation’s Global Virtual Conference
The Global Virtual Conference June 17-22, 2024 The Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions, their loved ones, healthcare providers, and researchers from around the world for a unique event that holistically explores the many facets of life with Marfan, Loeys-Dietz, VEDS, and related conditions. Topics include advancements in medical management, mental health and well-being, the latest research, community-building, and much more. A series of live, engaging sessions will culminate with a virtual…
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