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Debra of America’s 2018 Debra Care Conference
This event will be an opportunity for epidermyolsis bullosa patients and their families to network with one another. Participants will also be able to learn about the latest in epidermyolsis bullosa treatment and research. Registration EB families: $600 General attendee: $900
Find out more »American Syringomyelia & Chiari Alliance Project’s Great Expectations Annual Conference
ASAP Chiari & Syringomyelia Conference This event will be an opportunity for chiari and syringomyelia patients and their families to network with one another. Participants will also be able to learn about the latest in chiari and syringomyelia treatment and research. Registration $490/$175/$95 Families/adults/children Single day: $70 Banquet: $75
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