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September 2017

SMA Angels Charity Ball

September 23, 2017
Savannah Marriott Riverfront, 100 General McIntosh Blvd
Savannah, GA 31401 United States
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Spinal muscular atrophy (SMA) is a devastating, rare inherited disorder that causes muscle weakness and degeneration. There are four types of spinal muscular atrophy and currently there is no known cure for any of them. SMA Angels is an all volunteer charity whose aim is to raise awareness, and money, toward research for treatment and a cure for SMA. The almost twenty-year-old charity was started when twins Cassidy and Skylar Swanson were diagnosed with the severest form of SMA. Click here…

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June 2018

Cure SMA’s Annual SMA Conference

June 14, 2018 - June 17, 2018
Hilton Anatole Hotel, 2201 NORTH STEMMONS FREEWAY
Dallas, TX United States
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$215

The 2018 Annual SMA Conference This conference will bring together researchers, medical experts, scientists, and patient families to build community, learn, collaborate, and network. The conference consists of two parallel programs: one intended for researchers and professionals, and another for patients and families. Registration Adults: $215 Child: $60

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June 2019

Cure SMA’s Annual SMA Conference

June 28, 2019 - July 1, 2019
Disneyland Hotel, 1150 Magic Way
Anaheim, CA 92802 United States
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$215

The 2019 Annual SMA Conference Anaheim, California Cure SMA's annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers, allowing for a unique environment of collaboration and comradery. Don't miss this opportunity to learn the latest about spinal muscular atrophy, build community, and share with each other. For registration information, click here.

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