LISTEN TO OUR PODCAST
THE LATEST FROM PATIENT WORTHY
FEATURED
UPCOMING EVENTS
SIGN UP FOR OUR NEWSLETTER
@AlagilleSyndromeAlliance Together is better ! Go to your conferences, your meet-ups, your picnics- There you will find your comfort and direction. ... See MoreSee Less




- likes 0
- Shares: 0
- Comments: 0
@NORD✨ Big news! For the very first time, NORD will be sharing data highlights from the Living Rare Study! Join us for this virtual event where we’ll:
🔹 Give a quick overview of the study
🔹 Reveal the very first data nuggets
🔹 Hear from a participant about their experience
🔹 Talk about what’s next for recruitment in 2025
Don’t miss this exciting debut. Register today! rarediseases.zoom.us/webinar/register/WN_sszgTsHkQcaSWUHL-7-_Dw#/registration
... See MoreSee Less

@oneBlood #DonateBlood🎉 𝗠𝗶𝗹𝗲𝘀𝘁𝗼𝗻𝗲 𝗔𝗹𝗲𝗿𝘁! 🎉
Let's all congratulate the Hendricksons on hitting 𝟱 𝗴𝗮𝗹𝗹𝗼𝗻𝘀 donated. ❤️ Thank you for saving so many lives!
Ready to hit your next milestone? Schedule your next appointment today: 👇 givelife.io/9myt
... See MoreSee Less
