Bridge the Gap – SYNGAP Education and Research Foundation (ERF) is the leading, 501(c)3 non-profit, SYNGAP1 patient advocacy organization.  We are dedicated to improving the quality of life for patients and families affected by SYNGAP1.  Our focus includes public awareness, patient and family advocacy, educational programs/conferences and financial support for research.  In addition, Bridge the Gap – SYNGAP ERF, in coordination with NORD and with grant funding provided by the FDA, maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry.  The online patient registry gathers critical data, from patients around the world, (in accordance with patient privacy protection protocols) for use by clinicians and researchers.  We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate research and maximize our impact.  Our partnerships and collaborations include SYNGAP1 patients and families, clinicians, researchers, along with leaders in academia, the non-profit sector, community, government, regulatory agency and industry.  We remain committed every day to “building bridges of hope to better treatments and a cure for SYNGAP1!”

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

  • SYNGAP Syndrome

Resources & Support

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Patient Worthy Posts on SYNGAP

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