Why Being Mixed Race Sucks When You Have Amyloidosis
If you’re reading this I need to ask you an urgent question. Are you mixed race? Specifically, part Filipino and part European? Yes, I know,
- Rare Disease News
The Amyloidosis Foundation
The Amyloidosis Foundation
The Amyloidosis Foundation began with the vision of two patients, Don Brockman and Dennis Krysmalski, to support research and patients in the amyloidosis community. The Foundation prioritizes raising awareness for earlier diagnosis, educating medical personnel, and empowering patient advocacy through various services.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Amyloidosis
Amyloidosis Foundation NewsLetter
Greetings Patient Worthians! This month we are highlighting Amyloidosis, a rare disease that affects organs such as the heart, kidney, liver, the nervous system and
Amyloidosis Foundation Spring 2016 NewsLetter
Amyloidosis is a rare disease that affects organs such as the heart, kidney, liver, the nervous system and more. While there is no cure, there are treatments
Editor’s Choice: How Amyloidosis & Being Mixed Race Don’t Mix, Awful Sentences and a Tale of Brotherly Love
Happy Easter Weekend Patient Worthians! And if you don’t celebrate it, Passover is only a month away. If you don’t celebrate either one, then why not
What Is Amyloidosis, And How Can It Be Managed?
To understand the rare disease Amyloidosis, you have to understand the underlying cause. When bone marrow produces an abnormal protein, called “amyloid,” it can be deposited in virtually
How One Amazing Teen Supports Familial Amyloidosis
Have you lost a friend or family member? Do you wonder how you can memorialize or honor their life? This is the dilemma of Kate Shooshan,
