Breathe With Me

Breathe With Me is a social media community group trying to raise funds for cystic fibrosis research by focusing on outreach to the non-CF community. The group leads its campaigns by asking the general public to “try breathing like a person with cystic fibrosis.”

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for:

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Patient Worthy Posts on Cystic Fibrosis

Tiffany Senter’s Cystic Fibrosis Story: Gaining Strength from Idol Marilyn Monroe

Cystic Fibrosis Cystic fibrosis (CF) is a rare condition that causes mucus to build up in the lungs and the digestive system. It results in chronic

Can a Fire-Breathing Dragon Make Cystic Fibrosis Therapy Fun?

Since my son was old enough to hold a video gaming system, he’s been hooked. They’re fun, challenging, and (sometimes) educational. I tell myself that

California’s Starring Role in Screening for Cystic Fibrosis

We’ve known for a while that the key to ensuring a richer quality of life for people with cystic fibrosis is early detection and treatment.

Cystic Fibrosis Patients Have Better Quality of Life with Orkambi

Orkambi, a medication used to treat cystic fibrosis (CF), has improved the lives of some CF patients since approval last year. CF causes thick mucus

UK Cystic Fibrosis Community Fighting for Access to Orkambi

Gemma Daysh, a mum from Portsmouth, Hampshire was featured on BBC South Today on 3rd January, 2017 to highlight the fight faced by the cystic

Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence

Happy Friday Patient Worthians! Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn’t mean we won’t stop fighting the good fight for spreading