Children's Craniofacial Association
Children’s Craniofacial Association (CCA Kids), a national nonprofit headquartered in Dallas and founded in 1989, worked for over 27 years toward the vision of a world where all people are accepted for who they are, not how they look.
Each year approximately 50,000 children in the United States are born with or develop some form of facial difference (previously called disfigurements). In many cases, reconstructive surgeons can correct these problems early—often while the children are still infants. In other cases, however, reconstruction is not so easy or even possible. To assist these families, CCA offers programs and services including Patient Financial Assistance, the Annual Family Retreat & Educational Symposium, and kindness education and bullying prevention programs in middle schools across the country.
About Our Organization: Children’s Craniofacial Association, a 501(c)(3) nonprofit organization based in Dallas, Texas and founded in 1989, serves over 20,000 families per year. CCA’s mission is empowering and giving hope to individuals and families affected by facial differences. CCA envisions a world where all people are accepted for who they are, not how they look. Learn more about at http://www.ccakids.org.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Antley-Bixler Syndrome
- Apert syndrome
- Carpenter Syndrome
- Cleft Lip and/or Palate
- Coffin-Lowry syndrome
- Craniosynostosis
- Crouzon syndrome
- Facial Cleft
- Facial Infused Lipomatosis
- Facial Palsy
- Fibrous Dysplasia
- Frontonasal Dysplasia
- Hallermann-Streiff syndrome
- Hemangioma
- Hemifacial Microsomia/Goldenhar syndrome
- Microtia/atresia
- Miller Syndrome
- Moebius syndrome
- Nager Syndrome
- Pfeiffer syndrome
- Pierre Robin Sequence
- Saethre-Chotzen syndrome
- Treacher Collins
Resources & Support
Patient Worthy Posts on Craniofacial Syndromes
What to Know to Help During National Cleft And Craniofacial Awareness Month
July is national Cleft And Craniofacial awareness and prevention Month! While one of the fruits of summers is time off from school, shortened summer hours,
A Moebius Syndrome Story: An Unexpected Love that Crossed the Atlantic
Alex Barker never planned on marrying someone with his same rare diagnosis, but he has to admit, the shared experience has made him and his
Pierre Robin Sequence Parents Forced to Fight for Access to Treatment in EU
Rare disease families deal with a lot. The last thing they should be forced to have on their mind is how to get access to
South African Facial Cleft Deformity Clinic Celebrates 35th Birthday
Pretoria Moot Rekord recently reported on the 35th anniversary of the University of Pretoria’s Facial Cleft Deformity Clinic. The clinic caters to babies and children
Some Handy Resources For Apert Syndrome Awareness Month
June is Apert Syndrome Awareness Month! As summer sets in, let’s take a moment to learn a little more about this rare disease and do
The WONDERful Meg: How Treacher Collins Syndrome Inspires Her to Do Good
For many, being diagnosed with any disease – let alone a rare disease – is understandably devastating. Many have described managing their new lives as
