Children's Craniofacial Association
Children’s Craniofacial Association (CCA Kids), a national nonprofit headquartered in Dallas and founded in 1989, worked for over 27 years toward the vision of a world where all people are accepted for who they are, not how they look.
Each year approximately 50,000 children in the United States are born with or develop some form of facial difference (previously called disfigurements). In many cases, reconstructive surgeons can correct these problems early—often while the children are still infants. In other cases, however, reconstruction is not so easy or even possible. To assist these families, CCA offers programs and services including Patient Financial Assistance, the Annual Family Retreat & Educational Symposium, and kindness education and bullying prevention programs in middle schools across the country.
About Our Organization: Children’s Craniofacial Association, a 501(c)(3) nonprofit organization based in Dallas, Texas and founded in 1989, serves over 20,000 families per year. CCA’s mission is empowering and giving hope to individuals and families affected by facial differences. CCA envisions a world where all people are accepted for who they are, not how they look. Learn more about at http://www.ccakids.org.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Antley-Bixler Syndrome
- Apert syndrome
- Carpenter Syndrome
- Cleft Lip and/or Palate
- Coffin-Lowry syndrome
- Craniosynostosis
- Crouzon syndrome
- Facial Cleft
- Facial Infused Lipomatosis
- Facial Palsy
- Fibrous Dysplasia
- Frontonasal Dysplasia
- Hallermann-Streiff syndrome
- Hemangioma
- Hemifacial Microsomia/Goldenhar syndrome
- Microtia/atresia
- Miller Syndrome
- Moebius syndrome
- Nager Syndrome
- Pfeiffer syndrome
- Pierre Robin Sequence
- Saethre-Chotzen syndrome
- Treacher Collins
Resources & Support
Patient Worthy Posts on Craniofacial Syndromes
Photographer Sheds Light on Rare Diseases in Remarkable Project
Ceridwen Hughes is known for capturing visceral moments of reality in striking photography series. This time, she has navigated into the devastating world of rare
Living With Rare Disease in Trump’s America
A new book was just released called “Nasty Women: Feminism, Resistance, and Revolution in Trump’s America,” a collection of essay’s written by empowered women speaking
This Father and Daughter Were Born Without Ears or Cheekbones. Now, They’re Helping Others with Treacher Collins Syndrome
As reported in MSN, Duane Zingale explained that one aspect of being born with Treacher Collins syndrome is that you’re extremely memorable. Duane was born
The WONDERful Meg: How Treacher Collins Syndrome Inspires Her to Do Good
For many, being diagnosed with any disease – let alone a rare disease – is understandably devastating. Many have described managing their new lives as
Mariana’s Medical Journey Part 2: A Diagnosis
This is part 2 of Marian’a journey, click here for Part 1. After some genetic testing, we eliminated the most common, Cruzons Syndrome, so we
Why Does this Classically Trained Musician with Rare Bone/Tissue Disease Play His Cello in the Subway?
Kei Otake is a 19-year-old cello student at The Juilliard School – a prestigious performing arts college in New York City that boasts alumni like Viola
