Coalition to Cure CHD2

Coalition to Cure CHD2 is a 100% volunteer-run organization fueled by our desire to help our children & others with CHD2-related disorders.

Our Mission is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure.

Our Vision is to find safe and effective treatments that will cure CHD2-related disorders.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for:

Resources & Support

Connect With Coalition to Cure CHD2

Patient Worthy Posts on CHD2

LGS Foundation Designates Two Research Grant Receivers

Two lucky Lennox-Gastaut syndrome (LGS) researchers were awarded grants by the LGS Foundation last week on July 12. These two recipients are both doing fascinating

Share Your Story

February is RARE DISEASE MONTH! Patient Worthy believes that every rare story deserves to be told. Click below to tell us yours.

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Share Your Story

Coalition to Cure CHD2

Condition Awareness & Advocacy

Resources & Support

Connect With Coalition to Cure CHD2

Patient Worthy Posts on CHD2

LGS Foundation Designates Two Research Grant Receivers

Share Your Story

Let’s Work Together!

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