A Boy With Congenital Muscular Dystrophy is Being Supported in a Special Way
Michael Dickerson, aged 42, is originally from Hoedspruit Limpopo, South Africa. Recently, Michael was participating in a series of long distance trail runs when he learned
Cure CMD
Cure CMD
Cure CMD was established in 2008 with a mission to advance research toward treatments and a cure for congenital muscular dystrophies (CMD) and improve the lives of those living with CMD through the engagement and support of our community. Cure CMD collaborates with an ever-growing network of dedicated affected individual, parent, research, clinician and government advocates worldwide to achieve our mission with every initiative to continue to center the experiences and voices of CMD affected individuals and families. The organization works to empower the community, provide reliable and up-to-date information targeted toward our CMD community, and offer steadfast hope and commitment to our mission.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Congenital Muscular Dystrophies
AMO Pharma Presents New Rating Scale for Type 1 Myotonic Dystrophy Symptoms
A press release from American biopharmaceutical company AMO Pharma, published by PR Newswire, detailed the recent completion of the Company’s new congenital myotonic dystrophy type
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Researchers Believe Lithium May be Key to Developing a Drug for Limb Girdle Muscular Dystrophy
The News Hub at Washington State University recently carried an article describing initial success by researchers towards developing a drug for a rare form of
New Collaboration is Dedicated to Developing a Gene Therapy for Congenital Muscular Dystrophy
According to a story from globenewswire.com, the specialty pharmaceutical company Santhera Pharmaceuticals will be entering a collaborative partnership with the University of Basel’s Biozentrum. The
“Swings for Finn:” How a SELENON Diagnosis Spurred One Family into Advocacy (Pt. 1)
At the beginning of our interview, Lindsey Curley explains to me that there is a difference between listening and understanding. Listening is important, of course;
“Swings for Finn:” How a SELENON Diagnosis Spurred One Family into Advocacy (Pt. 2)
Before you read Part 2 of Lindsey’s interview, make sure to go back and take a look at Part 1! In Part 1, we discussed
