Cure CMD was established in 2008 with a mission to advance research toward treatments and a cure for congenital muscular dystrophies (CMD) and improve the lives of those living with CMD through the engagement and support of our community. Cure CMD collaborates with an ever-growing network of dedicated affected individual, parent, research, clinician and government advocates worldwide to achieve our mission with every initiative to continue to center the experiences and voices of CMD affected individuals and families. The organization works to empower the community, provide reliable and up-to-date information targeted toward our CMD community, and offer steadfast hope and commitment to our mission.
Here is a list of conditions this partner raises awareness and advocacy for:
Michael Dickerson, aged 42, is originally from Hoedspruit Limpopo, South Africa. Recently, Michael was participating in a series of long distance trail runs when he learned
A press release from American biopharmaceutical company AMO Pharma, published by PR Newswire, detailed the recent completion of the Company’s new congenital myotonic dystrophy type
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The News Hub at Washington State University recently carried an article describing initial success by researchers towards developing a drug for a rare form of
According to a story from globenewswire.com, the specialty pharmaceutical company Santhera Pharmaceuticals will be entering a collaborative partnership with the University of Basel’s Biozentrum. The
At the beginning of our interview, Lindsey Curley explains to me that there is a difference between listening and understanding. Listening is important, of course;
Before you read Part 2 of Lindsey’s interview, make sure to go back and take a look at Part 1! In Part 1, we discussed
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Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
