Plague Case in US Highlights Ongoing Risks of Rare but Serious Disease
A recent report from NDTV World brings attention to a rare but significant public health event: an American man has tested positive for plague, the
JumpStart
JumpStart
The Orphan Disease Center’s JumpStart program serves to establish and progress research agendas in emerging and neglected rare diseases. The JumpStart program partners with patient groups and families to address gaps by identifying key opinion leaders and introducing new researchers to a disease. The program can help facilitate the development of animal models, establish a patient alliance or a patient registry, and organize symposia. Due to limited resources, ODC is unable to provide financial support. JumpStart primarily offers scientific advisement and network outreach.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
- Emerging and neglected rare diseases
Resources & Support
Patient Worthy Posts on Rare Disease
Brain-Eating Amoeba Detected in NSW Water Supply Prompts Health Alert
Health authorities in New South Wales (NSW), Australia, have issued a public warning after the discovery of Naegleria fowleri—a rare but deadly “brain-eating” amoeba—in a
Understanding Chromosome 8P: Insights from the TREND Community
In our third installment from our series of reports provided by our partner TREND Community, we are going to be focusing on a different condition
Understanding IgG4-RD: Insights from the TREND Community
In our second installment from our series of reports provided by our partner TREND Community, we are going to be focusing on a different condition
The Risks of Self-Diagnosing Mental Health Issues on TikTok: A Growing Concern
Millions of social media posts and billions of views have turned TikTok into an influential platform for mental health conversations, but experts warn that using
AstraZeneca Expands into Rare Disease Care in South Africa, Bringing New Hope to Patients
AstraZeneca, a global leader in pharmaceuticals, has taken a significant step into the rare disease arena in South Africa, aiming to improve diagnosis, treatment, and
