Let the Men in Your Life Know About Men’s Health and Rare Diseases for Father’s Day
June 10th through 16th is Men Health’s/Rare Dads Week! We would like to devote some attention to the rare diseases that affect mostly men –
The SADS Foundation
The SADS Foundation
Established in 1991 by Dr. Michael Vincent, The Sudden Arrhythmia Death Syndromes Foundation (SADS) is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death. Sudden Arrhythmia Death Syndromes (SADS) are genetic heart conditions that can cause sudden death in young, apparently healthy people. These conditions can be treated and deaths can be prevented.
Warning signs for SADS conditions include: family history of unexpected, unexplained sudden death under age 40; fainting or seizure during exercise, excitement or startle; consistent or unusual chest pain and/or shortness of breath during exercise.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on SADS
LaMarcus Aldridge Retires Because of Wolff-Parkinson-White Syndrome
According to a story from MSN, basketball player LaMarcus Aldridge of the Brooklyn Trail Blazers has made the fateful decision to retire due to concerns
Patient Story: Overcoming Sudden Arrhythmic Death Syndrome
Alexis Loveless is a 14-year-old from Louisville, KY who was recently diagnosed with Long QT syndrome. Now, she’s doing her best to raise awareness by
Rare Classroom: Wolff-Parkinson-White Syndrome
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Family Calls for Mobile Cardiac Screenings After Son’s Death
In 2019, Nathan James Bryan was 31 years old. He enjoyed drinking beer with his friends, working out, and spending time with his family. In
Sudden Arrhythmia Death Syndromes Foundation (SADS) Educates FDA on Living with ARVC/D Through Externally-Led Patient-Focused Drug Development Meeting
This press release was provided by the Sudden Arrhythmia Death Syndrome Foundation (SADS), a Patient Worthy partner organization. Key facts: ● Externally-led patient-focused drug development
