World Without GNE Myopathy

WWGM’s mission is to generate awareness of GNE Myopathy among patients globally, accelerate development of a therapy for GNE Myopathy, make treatments available and accessible to all patients; and to provide support to patients for leading a fulfilling and safe life.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

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Patient Worthy Posts on GNE Myopathy

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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