Believe it or not, it wasn’t until final exams my freshman year in college that I heard the term “stressed out.” It just wasn’t used that often back then. Nor…
Alternating Hemiplegia of ChildhoodWhat is alternating hemiplegia of childhood?Alternating hemiplegia of childhood is a rare, neurological condition that is characterized by episodes of paralysis that often impact just one side…
For rare diseases in which no current treatment options are available, such as GM1 gangliosidosis, there is an urgent need to find therapeutics and improve patient outcomes. Gene therapy company…
I think everybody would agree that stress is a challenge in their lives. Personally, I think we should take on the belief that no stress exists and that it is…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
How many of you find yourself rushing around and it’s causing you stress and pain? And if you already have pain, does it add to your pain? Are you trying…
GM1 GangliosidosisWhat is GM1 gangliosidosis?GM1 gangliosidosis is a rare, progressive lysosomal storage disorder that is characterized by the death of neurons in the brain and spinal cord. Some researchers divide…
According to a story from MarketWatch, the biotechnology company Cyclo Therapeutics announced that is has proceeded with the enrollment for its phase 3 clinical trial. This trial will evaluate an…
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