Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

449 Search Results Found

You searched for: "dystonia"
  1. Home>
  2. Search results for “dystonia”>
  3. Page 53
Editor’s Choice Weekend Roundup: Halloween Screams and More!

Editor’s Choice Weekend Roundup: Halloween Screams and More!

It's flipping Halloween week! While some of these stories will give you the good feels, we have one for you that will give you the heebie jeebies. Check out these…

Continue Reading Editor’s Choice Weekend Roundup: Halloween Screams and More!
Happy Halloween: These 12 Monsters are Behind Your Rare Disease Nightmares

Happy Halloween: These 12 Monsters are Behind Your Rare Disease Nightmares

Admit it. You never outgrew Halloween. Oh sure, you may not be able to score those sweet fun-size candy bars from the neighbors anymore (at least not without getting a…

Continue Reading Happy Halloween: These 12 Monsters are Behind Your Rare Disease Nightmares
Balloons Do More Than Just Fly, They Raise Awareness

Balloons Do More Than Just Fly, They Raise Awareness

The Proclaimers said they would walk 500 miles for the one they love. This balloon does one better. In a blaze of purple, 600 balloons were released in the UK…

Continue Reading Balloons Do More Than Just Fly, They Raise Awareness
Esto es lo que ocurre cuando los pasajeros de una aerolínea huelen un pañal sucio

Esto es lo que ocurre cuando los pasajeros de una aerolínea huelen un pañal sucio

Nos ha ocurrido a todos. Es un viernes por la tarde. Estas en el aeropuerto, ansiosamente esperando cerca de la puerta de abordo para el próximo vuelo. Han pasado demasiados…

Continue Reading Esto es lo que ocurre cuando los pasajeros de una aerolínea huelen un pañal sucio
Meme Monday: What Halloween Monster is Causing Your Rare Disease?

Meme Monday: What Halloween Monster is Causing Your Rare Disease?

Meme Monday has been taken over by some of the most treacherous monsters of Halloween and Hollywood lore. All week we are profiling each monster that has tied us all…

Continue Reading Meme Monday: What Halloween Monster is Causing Your Rare Disease?
Which Hilarious Character is Your Rare Disease

Which Hilarious Character is Your Rare Disease

Having a rare disease sucks, but sometimes it helps to cut your disease down to size mentally--especially if you can't do it physically! And, hey, laughing is better than crying,…

Continue Reading Which Hilarious Character is Your Rare Disease
Half a Million People Are Affected, So Why is This a Secret?

Half a Million People Are Affected, So Why is This a Secret?

Eight years ago, Gina Rosendall-Saucedo received a diagnosis for her persistent movement disorder that she never expected. After an 18-month search for answers, she finally had one, but it was…

Continue Reading Half a Million People Are Affected, So Why is This a Secret?

20 Shocking Songs About Chronic Disease That Will Spill Your Coffee

Here at PatientWorthy, we think laughter can be the best medicine. Ironic humor is sorta our thing. But to those easily offended, or perhaps even moderately intolerant, we suggest you…

Continue Reading 20 Shocking Songs About Chronic Disease That Will Spill Your Coffee
  • Go to the previous page
  • 1
  • …
  • 50
  • 51
  • 52
  • 53
  • 54
  • 55
  • 56
  • 57
  • Go to the next page

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info