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S.O.S. for HD Advice: How to Convince Families to Get Support

S.O.S. for HD Advice: How to Convince Families to Get Support

After talking on the phone with some of my family members, I felt a range of emotions from anger and frustration to guilt and sadness. It breaks my heart because…

Continue Reading S.O.S. for HD Advice: How to Convince Families to Get Support
What New Hope is Coming for Huntington’s Patients?

What New Hope is Coming for Huntington’s Patients?

Approximately one in 15,000 people have a defect in their HTT gene and the outcome of that defect is ultimately life-ending. It's called Huntington's disease, or HD, and the average…

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Size Matters Not When it Comes to Huntington’s Research

Size Matters Not When it Comes to Huntington’s Research

We’ve written before about the frankly awful Huntington’s disease. The devastating way it strips a person of their motor functions, cognition, and day-to-day quality of life. Treatments remain relatively scarce…

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One Great Author is Huntington’s New Champion

One Great Author is Huntington’s New Champion

For me, a good book has the ability to transport me to another place. I often find myself escaping within the pages to another world created by the author. Through…

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Why Light Therapy Is The Best Therapy For HD

Why Light Therapy Is The Best Therapy For HD

Could slowing the progression of Huntington's Disease (HD) be as simple as using a really bright light? Not quite. That's an oversimplification, but let's break it down. In April, researchers…

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Dancing With Huntington’s is the New Craze You Need to Know

Dancing With Huntington’s is the New Craze You Need to Know

Dancing is all the rage these days, with shows like Dancing With the Stars bringing in top ratings. People are enrolling more in dance classes, and going to the ballrooms in…

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Treatment Today and Why It’s Giving You Permission to Hope

Treatment Today and Why It’s Giving You Permission to Hope

In the past, a diagnosis of Huntington's disease offered the patient absolutely no hope. It was understood that a downward trajectory was the only way the disease would play out,…

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Huntington’s Has No Cure, But There is Help Available

Huntington’s Has No Cure, But There is Help Available

A recent study at the University of Edinburgh in Scotland is showing results that link genetics to certain forms of mental illness. Briefly mentioned was the fact that, although the…

Continue Reading Huntington’s Has No Cure, But There is Help Available
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