Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

300 Search Results Found

You searched for: "ovarian cancer"
  1. Home>
  2. Search results for “ovarian cancer”>
  3. Page 35
Insurance Finally Approves Surgery for Father with Pseudomyxoma Peritonei

Insurance Finally Approves Surgery for Father with Pseudomyxoma Peritonei

  In 2020, Anthony Di Laura and Jackie Cucullo were over-the-moon. The married couple had just learned that Jackie was pregnant with their first child. Anthony and Jackie were thrilled…

Continue Reading Insurance Finally Approves Surgery for Father with Pseudomyxoma Peritonei
NORD Will Provide Grants for Research on Three Rare Diseases

NORD Will Provide Grants for Research on Three Rare Diseases

Rare disease research can be difficult to conduct, with one of the major contributing factors being funding. Research is expensive, and I mean really expensive. That's why grant funding and other…

Continue Reading NORD Will Provide Grants for Research on Three Rare Diseases
New Pact Created to Assess the Genomics of Nasopharyngeal Carcinoma

New Pact Created to Assess the Genomics of Nasopharyngeal Carcinoma

A new, joint research pact between Illumina and the National Cancer Center Japan aims to shed light onto the clinical information and genomics of nasopharyngeal carcinoma, a rare cancer. Together,…

Continue Reading New Pact Created to Assess the Genomics of Nasopharyngeal Carcinoma
Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion

Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion

  Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

Continue Reading Compassion Corner: A Patient Almost Died Because of a Doctor’s Lack of Understanding and Compassion
First Patient Dosed in Pidnarulex Study for Solid Tumors with HR Mutations

First Patient Dosed in Pidnarulex Study for Solid Tumors with HR Mutations

Homologous Recombination (HR) gene mutations play a role in genomic stability and plasticity, and sometimes work to repair cellular DNA damage. These mutations cause genetic information to be shared between…

Continue Reading First Patient Dosed in Pidnarulex Study for Solid Tumors with HR Mutations
DAXX Protein Restoration Could Prevent Alzheimer’s

DAXX Protein Restoration Could Prevent Alzheimer’s

Have you ever heard of a “chaperone” protein? Well, the term pretty much refers to proteins which help direct the way that proteins fold, or a protein which leads “quality…

Continue Reading DAXX Protein Restoration Could Prevent Alzheimer’s
Study of the Week: A Possible New Treatment for Mantle Cell Lymphoma

Study of the Week: A Possible New Treatment for Mantle Cell Lymphoma

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: A Possible New Treatment for Mantle Cell Lymphoma
WP1066 for Ependymoma Earns Rare Pediatric Disease Designation

WP1066 for Ependymoma Earns Rare Pediatric Disease Designation

  Earlier this year, WP1066, a p-STAT3 inhibitor, received three separate Rare Pediatric Disease designations for the treatment of medulloblastoma, atypical teratoid rhabdoid tumor, and diffuse intrinsic pontine glioma. Now,…

Continue Reading WP1066 for Ependymoma Earns Rare Pediatric Disease Designation
  • Go to the previous page
  • 1
  • …
  • 32
  • 33
  • 34
  • 35
  • 36
  • 37
  • 38
  • Go to the next page
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info