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Machine Learning Helps Identify Patterns of Progression in ALS

Machine Learning Helps Identify Patterns of Progression in ALS

According to a story from myscience.org, neurodegenerative diseases, such as amyotrophic lateral sclerosis, are diseases that progressively worsen over time. However, progression in this disease is not consistent across all…

Continue Reading Machine Learning Helps Identify Patterns of Progression in ALS
A Pediatrician Living with Gaucher Disease: Chuck Goodman

A Pediatrician Living with Gaucher Disease: Chuck Goodman

Parents and doctors were concerned about Chuck Goodman's health from an early age. In fact, they thought he had a deadly case of childhood leukemia. At around age five, Chuck…

Continue Reading A Pediatrician Living with Gaucher Disease: Chuck Goodman
Study of the Week: Understanding the Mechanism of Frontotemporal Dementia

Study of the Week: Understanding the Mechanism of Frontotemporal Dementia

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Understanding the Mechanism of Frontotemporal Dementia
Will This Novel Drug That Utilizes AI Succeed in Having an Impact on ALS When so Many Others Have Failed?

Will This Novel Drug That Utilizes AI Succeed in Having an Impact on ALS When so Many Others Have Failed?

Verge Genomics, based in San Francisco is one of a series of biotechs that have entered into a new era using AI in drug discovery. The company is backed by…

Continue Reading Will This Novel Drug That Utilizes AI Succeed in Having an Impact on ALS When so Many Others Have Failed?
Could This Medication be Repurposed to Treat Amyotrophic Lateral Sclerosis?

Could This Medication be Repurposed to Treat Amyotrophic Lateral Sclerosis?

According to a story from Medical Xpress, a medicine used to treat high blood pressure and enlarged prostate could be a potential therapy for amyotrophic lateral sclerosis (ALS), a rare…

Continue Reading Could This Medication be Repurposed to Treat Amyotrophic Lateral Sclerosis?
Study: H. Pylori in a New, Beneficial Role in Inflammatory Bowel Disease

Study: H. Pylori in a New, Beneficial Role in Inflammatory Bowel Disease

IBD (inflammatory bowel disease) is an umbrella term for ulcerative colitis and Crohn’s disease involving chronic inflammation in the digestive tract. Common symptoms are fatigue, pain, and reduction in appetite.…

Continue Reading Study: H. Pylori in a New, Beneficial Role in Inflammatory Bowel Disease
Study of the Week: Do These Protein Fibrils Suggest a Connection Between Certain Neurodegenerative Diseases?

Study of the Week: Do These Protein Fibrils Suggest a Connection Between Certain Neurodegenerative Diseases?

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Do These Protein Fibrils Suggest a Connection Between Certain Neurodegenerative Diseases?
Phase 3 Investigation of Ampreloxetine Produces Positive Results for Neurogenic Orthostatic Hypotension

Phase 3 Investigation of Ampreloxetine Produces Positive Results for Neurogenic Orthostatic Hypotension

Theravance Biopharma Inc. has just released results from their 2nd Phase 3 investigation of Ampreloxetine as a therapy for symptomatic neurogenic orthostatic hypotension (nOH). Symptomatic nOH NOH is a rare…

Continue Reading Phase 3 Investigation of Ampreloxetine Produces Positive Results for Neurogenic Orthostatic Hypotension
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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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