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Metformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients

Metformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients

As reported recently in Medscape, forty-eight patients with myotonic dystrophy type 1 (DM1), were identified by way of the DM-Scope registry, which is the largest collection of data for the DM population. The…

Continue Reading Metformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients
Lyme Disease Linked to Increased Psychiatric Disorder Risk

Lyme Disease Linked to Increased Psychiatric Disorder Risk

In the past, researchers have questioned whether an association exists between Lyme disease and psychiatric or mood disorders such as depression, anxiety, or even suicidal ideation. While some recognized a…

Continue Reading Lyme Disease Linked to Increased Psychiatric Disorder Risk
Compassion Corner: The Challenges and Barriers Are Universal

Compassion Corner: The Challenges and Barriers Are Universal

Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

Continue Reading Compassion Corner: The Challenges and Barriers Are Universal
Phase 2 Trial Begins to Evaluate Pitolisant for DM1

Phase 2 Trial Begins to Evaluate Pitolisant for DM1

At the end of June 2021, pharmaceutical company Harmony Biosciences Holdings, Inc. ("Harmony") shared the initiation of a Phase 2 clinical trial via news release . During the trial, the…

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Phase 3 Trial Data Shows Ultomiris Promise for gMG

Phase 3 Trial Data Shows Ultomiris Promise for gMG

While myasthenia gravis (MG), an autoimmune neuromuscular disorder, can be treated, there is a smaller subset of patients who are treatment-refractory. Those whose condition is not easily treated are thought…

Continue Reading Phase 3 Trial Data Shows Ultomiris Promise for gMG
Better Understanding of Inflammatory Responses Could Aid Treatment of VLCAD

Better Understanding of Inflammatory Responses Could Aid Treatment of VLCAD

Dr. Jerry Vockley from the UPMC Children's Hospital of Pittsburgh has been studying the rare disease VLCAD for years. His work has led to the creation of two therapies which…

Continue Reading Better Understanding of Inflammatory Responses Could Aid Treatment of VLCAD
Enrollment Begins for Phase 3 Niemann-Pick Disease Type C1 Trial

Enrollment Begins for Phase 3 Niemann-Pick Disease Type C1 Trial

According to a story from MarketWatch, the biotechnology company Cyclo Therapeutics announced that is has proceeded with the enrollment for its phase 3 clinical trial. This trial will evaluate an…

Continue Reading Enrollment Begins for Phase 3 Niemann-Pick Disease Type C1 Trial
Dancing Could Help Improve Parkinson’s Disease Symptoms

Dancing Could Help Improve Parkinson’s Disease Symptoms

According to a story from Parkinson's News Today, a three-year study has determined that dancing to music weekly may help slow the progression of Parkinson's disease symptoms. This effect included…

Continue Reading Dancing Could Help Improve Parkinson’s Disease Symptoms
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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