Cystinosis is most often diagnosed before the age of two. Through medical advances over the last 20 years the prognosis for those with cystinosis has improved. Now more and more…
Here at Patient Worthy, we spill a lot of (virtual) ink talking about all aspects of living with a rare disease. Our goal is to be supportive and understanding, a…
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Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
