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Daily Archives: July 23, 2015

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An Art Exhibit is Traveling 6000 miles, Here’s Why You Should Care

  • Post author:Patient Worthy Contributor
  • Post published:July 23, 2015
  • Post category:Cystinosis/Rare Disease

For a disease that has so little attention drawn to it, there’s quite a few people that want to bring it to the forefront in the form of a traveling…

Continue Reading An Art Exhibit is Traveling 6000 miles, Here’s Why You Should Care

This Little Girl’s Diet Will Make You Wish You Had a Rare Disease

  • Post author:Patient Worthy Contributor
  • Post published:July 23, 2015
  • Post category:GLUT1 DS/Rare Disease

If your doctor told you that you could eat pizza, meat, and other high-fat foods daily you would probably sign up for that prescription immediately. But if the catch was…

Continue Reading This Little Girl’s Diet Will Make You Wish You Had a Rare Disease
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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