Have you always wanted to share your story with Congress to ask for more help with your Rare Disease?
The Every Life Foundation is making it easier with travel stipends of $600 to get to Washington DC to do that ( $1000 for individuals from Hawaii, Alaska and Puerto Rico). While the deadline for this stipened was Dec. 31st, a few states still have stipends available; including AK, AR, DE,HI, IA, ID, KY, ME, MT, NE, NH, NM, ND, TN and WY.Only advocates in those states can still apply for a stipend on the Rare Giving application page.
Don’t know what to say ? Nervous about going alone ? No worries- you won’t be alone, you will be with many advocates and training is provided ahead of time on the web. More details to come, BUT APPLY FOR THE TRAVEL GRANT NOW!~
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!