Being a rare mom is a nightmare. You never expected to have to tell your child that they have something that you can’t fix. You always thought that you’d be able to conquer all your child’s monsters. What bedtime story do you read your child when you don’t know how to fix what they are going through?
Melissa Hogan wrote If You Hear Your Child Has a Rare Disease because she knows just how it feels.
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- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
